SAFA KAZANDI! 1.8 MILLION $ Toplandi..!

Safa Kazandi ilacini almaya Dubaiye gidiyor.. Hepinize cok tesekkur ederiz tum destek ve emekleriniz icin..

Hi, we are raising funds for our 9 months old baby Safa Baby. Safa has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 in July 2022.It’s a rare genetic disease.Baby Safa is suffering from symptoms like difficulty in holding his neck, labored breathing, difficulty in swallowing, and inability to move his legs like any other normal infant of the same age. If not treated, the life span of infants with SMA Type 1 varies up to 1 or 2 years depending on the progression. Day by day Safa’s condition is worsening due to reduced muscle activity.Treatment :Zolgensma Gene Therapy is a potential cure for SMA for children below two years of age and it has to be imported from the USA. Baby Safa needs Zolgensma gene therapy as soon as possible to save his life. Zolgensma comes at an extortionate price of USD $2.125 million approximately excluding taxes and duties. The price of medicine is beyond our reach.Crowd funding for similar medical causes was successful in Turkiye in recent instances for such a huge amount. On this note, we seek your strong heartfelt support in fundraising to save our Safa’s life.Please donate whatever you can with your kind heart to save Baby Safa’s life. Please follow and share Safa’s story on social media. #safayaumutol at InstagramRecently, we have been observing more and more SMA cases are visible due to developments in life-saving therapies and medicines. Spreading the word on diagnoses and about the disease could save a few more lives.Thank you!