Payton journey to Philly.

Payton was born with a congenital heart defect. Basically born with half of a heart. She's endured 7 open heart surgeries and currently a single ventricle. Basically she functions with half a heart. When she had her last surgery we where advised she will probably be ok till her late teens. However she developed a rare side effect PLE.  With this she losing protein every time she uses the bathroom. There is no cure and the treatment options are short term. However there is a new treatment that has been fairly successful. So we are headed to Philly October 14th to the guy who invented the treatment. We are praying that the insurance will cover us and that my princess can get the necessary help to fight PLE. If you can help in any way we will be forever thankful.