Olivias Medical needs
I was 14 years old when I was injured in a soccer game. a freak kick behind my shin guard started this journey. On 7/5/19 I was admitted to the hospital. It was determined that I had CRPS type 2. (Complex regional pain syndrome) This is a rare neurological condition that has no cure. But with treatment it can be managed.
I was in the hospital (ER) 13 times with episodes. I now have several other conditions, AMPS (amplified musculoskeletal pain syndrome), gastritis, costochondrits and vocal cord dysfunction.
The AMPS was diagnosed after i went to a local pain management clinic and I was given 3 sympathetic nerve blockers. The 3rd left me unable to walk for 21 days.
Since my initial diagnosis I have seen many many doctors in Rochester and none can help. I need treatment at a clinic. None of which is covered by insurance. Most treatments are NOT covered for this condition. It’s incredibly frustrating and overwhelming. :(
I was an avid sports player, basketball, soccer, running, even walking now is with incredible pain. My life has changed drastically. I desperately need treatment.
CRPS patients have a high suicide rate. I don’t want my daughter to become a statistic! We want to raise awareness and get her the treatment she needs.
Thank you from our family!!!