Nora Medical Fund

At the age of only 4 months old Nora started having a certain type of seizures called infintile spasms.  After a brief hospital stay a diagnosis of a rare genetic disorder called Tuberous Sclerosis was given.  This rare disease only affects a mere 50,000 people.  With this rare disease Nora can have tubors on any or all of her vital organs that can appear at any time in her life.  Luckily only her brain has been affected so far.  In recent months Nora has started having more seizures.  In recent testing it showed Nora is having continous seizures.  That is when the devastating news came, Nora at the age of only 2  will be having craniotomy surgery, which means Nora will have part of the left side of her brain removed.  Drs and surgeons are hopeful this will stop the seizures and improve her quality of life, for one give her the ability to talk.  
This has been a financial struggle for this young couple , Nora has to travel very frequent two hours away from home to a hospital that specializes in Nora's rare condition.  For the last 20  months this family has to pay out of pocket to stay out of town for days at a time.  On January 8th, sweet baby Nora will he having her surgery two hours away from home, where her parents will have to pay for expenses of being out of town. The Kircher family has paid so many expenses so far and is drained financially.  Mom has started a new job and has no paid time off, dad as a school teacher trying to support his family.  Nora does have insurance but with co-pays , deductibles and high price medications is it hard for the Kircher family. 
Thank you in advance for any support