Help Nick get his Lifesaving Cancer Treatment

At the beginning of February 2020, Nick (who was just 14 years old at the time) started having severe pain in his left calf. After an x-ray at the hospital, the doctors found a tumor in his left calf (the fibula). The cancer had spread and metastases were found at other parts of his body. Nick was diagnosed with stage 4 Ewing´s Sarcoma an uncommon (only about 1 in 600 thousand children gets Ewing´s Sarcoma) and life-threatening form of childhood cancer.

 

After several medical procedures such as a Biopsy (where you take a part of the tumor and analyze it), MRI scans, CT scans, and PET scans, Nick started his Chemotherapy treatment at the Children's Hospital in Gothenburg. Nick would go on to have a total of 14 intense cycles of chemotherapy, an operation where they removed his fibula (a part of the leg), and 25 sessions of radiation therapy. He also had an autologous stem cell transplant at the end of his treatment where he stayed at the hospital for 5 weeks. This took place in a period of 15 months. After the intense 15 months of treatments Nick was declared cancer free the relief was immeasurable.

 

Sadly after just 3 months Nick started having pain in his upper back. And the x-ray showed that the cancer had returned. This time the results showed that the cancer had spread again and unfortunately when the cancer is relapsed chemotherapy usually is not an effective alternative due to the cells being immune. Despite this Nick still received 4 cycles of an old alternative chemotherapy for relapsed cancers which unfortunately didn't work.

 

Nick´s family and the medical team have found an alternative promising study with good results specifically for Ewing Sarcoma patients in New York, USA.

 

While the Swedish healthcare is amazing and to a certain degree free from expenses this study/treatment is not approved by the FDA and therefore cannot be financed by the Swedish national healthcare system. Unfortunately, this means that we have to fund this treatment for Nick by ourselves. The expenses are high and the time is limited, the treatment is planned to start at the end of January.

 

Nick is an amazing young boy who spreads happiness among his friends and family. He is a loyal friend who is thoughtful not only to the people closest to him but everyone around him. Nick have been living an sporty and healthy life and still tries to do everything he can to stay active. Nick is a hardworking student with high ambitions and have been having a goal of becoming a doctor for his entire life, despite the sickness Nick managed to get higher than average grades in school. Nick is the most important thing in our lives and it would be very hard to imagine a life without him. Nick has been fighting cancer for almost 2 years and has always been positive and faithful in his struggle with this disease.

 

We ask you to please help us fund this treatment and help us get Nick his potential life saving treatment. No amount is too small and every penny will help. Even if you can´t donate, please help us share this story with as many people as possible.

 

Thank you so much for your support, it really does mean everything to us.

 

All love Julia, Orod and Nick.

 

Updates

February 23, 2022

by Orod Hatamifar, Organizer

Hello everyone,

 

Here is an update on Nick’s situation.

 

First of all Nick and his family are stunned and very grateful for the massive support we have received in the last couple of months. We are really amazed and would like to thank everyone for their generous donations and messages. We would also like to thank everyone who has spread the word about our situation whether it be by social media or word of mouth.

 

As you all may know Nick was planning on going to the US at the end of January. Nick has endlessly been trying to fly to the US but since Nick started having some difficulties with breathing which made it much harder to fly and severe pains in different parts of his body such as the jaw, mouth, shoulder and his lungs, we have been forced to stay in Sweden to get different courses of radiation treatments which have been delaying Nick’s possibility to travel to the US. Thankfully Nick's pains and difficulties with breathing have become better and though this is temporary for a short period of time, this has created a real possibility to fly to the US.

 

After finally getting an approval from Nicks physician to fly and receiving his longer term

visa Nick is scheduled to fly to the US on the 24th of February and start his treatment on the 25th. As you also may know Nick was planning on starting his treatment in New York, but since the treatment was delayed Nick was forced to change the location to California because the treatment in New York was unfortunately filled up with other patients.

 

We want to thank you all again for the donations, contributions and for spreading the word out there!

 

/Nick and his family