Build A Bridge 4 Talaiya (LGEA)

Hello Everyone,

At about 16 weeks pregnant my life changed when i was told there was an abnormality with my unborn child! I was diagnosed with polyhydrominos, which indicates the fetus has no stomach or the stomach is small do to a gap in the esophagus! During my pregnancy i went through numerous amnio reductions to drain fluid from my amniotic sac! I gladly made it to 37 weeks before giving birth to my babygirl!

Almost 2 years ago on April 10th, I gave birth to a little blessing born with a very rare condition called Esophageal Atresia and she also has DiGeorge Syndrome. My baby had her first surgery at 2 weeks old for a gtube but it was unsuccessful because her stomach was entirely too small for the tube to fit. Talaiya did not consume her first feeding until she was a month old! Its was then they found out she had a milk allergy by doing a malrotation surgery on her. The doctors informed me that it eould be impossible to try to fix her esophagus because the gap between her upper esophagus and her small stomach was entirely too long!

My daughter was 4 1/2 months old when she received her repair surgery that i prayed would be her last surgery! Unfortunately, my daughter esophagus had ruptured and she has went through 9 more surgeries & 6 procedures since then! After her surgery she was diagnosed with Severe GERD, also known as severe acid reflux. My daughter cant gain weight because she has no digestive system which causes her to vomit whatever she swallows along with her acidic episodes. My daughters medical card does not pay for none of her medications because they are too powerful for her age as of now. We are trying our very best to get to Boston Childrens Hospital for a second opinion & a successful surgery. Boston is one of the very few places that specializes in my daughters condition! Anything would put us another step towards Talaiya being a healthy & Normal little girl!

Every $1 counts!

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