Naomi’s Journey with HIE

Naomi Storm was born via C Section and came out not breathing. From the lack of oxygen she then suffered a seizure at just minutes old. She then got immediately transferred to UVA’s NICU (2 hours from where we live)  I only got to meet my daughter for 5 minutes and didn’t even get the opportunity to touch her. When sent to the NICU she was cooled down to 92 degrees so brain damage would be minimal but did end up having another Seizure. She then got rewarmed and is constantly watched for anymore seizures. She sleeps constantly and is worrisome to her doctors. She can not come home until she is fully able to eat from a bottle and have her feeding tube removed. Her official diagnosis is HIE ( Hypoxic-Ischemic Encephalopathy) Some kids will experience no health issues or only mild or moderate effects from HIE, while others have much more severe and permanent disability, such as developmental delay, cerebral palsy (motor impairment), epilepsy, or cognitive impairment. The best thing for her is to have us here stimulating her constantly with that being said James is not able to work due to being here with her where he’s needed. We are the type that don’t like to ask for help but we are needing this in order to pay our bills and expenses. Even if you cannot donate just sharing will help please.