At 20 weeks pregnant we found out that this sweet little girl had a birth defect called gastroschisis. This is where her stomach wall didn’t fully form so she had a small hole next to her belly button with her intestines on the outside of her body. With this birth defect we knew time in the NICU was going to be a given and she would have surgery soon after her birth if not the same day as she was born.
She was born on December 15, 2020 and she had what they called closure surgery 3 days after birth. When you have problems with the bowel, multiple things can happen as with any surgery. All humans have a bacteria in their body called E. Coli it lives in your gut and that’s where it stays. With her having surgery on her gut, that particular bacteria was introduced into her bloodstream and it spread like wildfire. It’s a very resistant bacteria that can cause a lot of damage to the body and with any blood bacteria it has a very high chance of getting into your brain, causing bacterial meningitis. Our poor girl did in fact catch this bug and now has full blown bacterial meningitis. She was moved in to isolation and that’s where she will stay for 21 days at the minimum. The first two days were the hardest. She stopped breathing on her own, her platelets had dropped significantly, and her heart rate dropped so low it was in the 50s. She has had two platelets transfusion and one blood transfusion. She started having seizures and didn’t stop. Her poor brain was having over 400 a day her little body was put through the wringer!
She has finally stopped seizing by being completely sedated at this time. She has had the bacteria cleared from her blood but not her brain yet. They are in for a long raid of recovery!
Her mom has stayed with her since she has been born, only coming back one day to get her car. She lives 3 hours away from the hospital that her daughter is staying at. She lives in her small isolation room in the nicu only leaving her bedside to eat and pump. Every meal she eats cost money and every where she goes cost gas she is currently not working to stay with her little fighter and needs help during this time!! Anything can help and I know she is more than appreciative of the love and support she has gotten from everybody! the prayers are working and we need them still to this day! Thank you to everyone
- Ashley Chandler
- Fadi & Polina Yacob
- Diane, Mandy, and Amie Morton Ford Ford
- Sharon A Hurst
Organizer and beneficiary
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