Bonnie's fight for stem cell treatment.
Donation protected
My names bonnie-Lyn I was born at 29 weeks and my mummy nearly died having me. I was deprived of oxygen for 45 mins as my mummy was very poorly and was bleeding a lot and also her heart stopped. I wasn’t in a very good way when I was born and the doctors could not believe my heart was still beating but I fought very hard because I wanted to meet my mummy and give my mummy a reason to fight to. We are both survivors.
When I was born my bowel was not connected and I needed an operation to fix it. I had to be transferred to alderhey my mummy was to poorly to come with me so my nanny came whilst there my nanny was told the doctors think I have downsyndrome they rang my mummy to see if they could test me and she said yes later I was diagnosed with downsyndrome.
Me and my mummy very slowly got better and was eventually discharged home.
Once home I loved seeing all my brothers and sisters and we was very happy to be home. Shortly after I had respiratory arrest and scared my mummy very much she had to work really hard to get me breathing. I was scared to I didn’t know what was happening but I really struggled and had to go back to hospital.
1 week later it happened again so we had to go Manchester and I was put into oxygen and had to have loads of test.
There they found I had tracheamalasia and broncamalsia they were gonna put me on a trachy we stayed there 3 months altogether and after a few more tests they found I had transposition of the arteries and that was putting pressure on my tracheal, I was transferred to alderhey were I had to have heart surgery to snip and pin these arteries back. I was discharged home and 11 days later I had a severe respiratory arrest that very nearly turned into cardiac arrest I was put on a ventilator into a coma and transferred over to Manchester. We stayed in intensive care for 8 days and back on the ward for 3 weeks. My mummy was told with my condition I could stop breathing at anytime and I have to be monitored at home. So now we have a silly machine that makes loud noises lots of times through the night�
Me and my mummy have been home since July over the summer months my mummy’s been able to take good care of me but now it’s getting cold I have started to get a bit poorly again.
I am 11 months old and I can’t move my body voluntarily at all my mumy has been worried for a while but the doctors kept saying “she was born early and has downsyndrome”.
Last week my mummy was told I have cerebral palsy dystonic cerebral and I’m quite severely affected my mummy was devastated she cried lots and cuddled me lots I don’t really know any different but my mummy is thinking about my whole future. I am Bonnie-Lyn I am 11 months old and I have 2 disabilities. I have a loving family so no matter what I know I am gonna be happy �
This page has been set up by my nanny to try and improve my quality of life through stem cell treatment is used to repair some of the damaged cells that effectively has caused my cerebral palsy. I am hoping that with this treatment I will be able to have a full life being able to join in with my older brothers and sisters playing and having fun. I am just asking if anyone is able to donate just a little, as the treatment is extremely expensive and my family cannot pay for it alone. Any little donation will help me loads and your kindness will help me to have the best chance at a full life.
When I was born my bowel was not connected and I needed an operation to fix it. I had to be transferred to alderhey my mummy was to poorly to come with me so my nanny came whilst there my nanny was told the doctors think I have downsyndrome they rang my mummy to see if they could test me and she said yes later I was diagnosed with downsyndrome.
Me and my mummy very slowly got better and was eventually discharged home.
Once home I loved seeing all my brothers and sisters and we was very happy to be home. Shortly after I had respiratory arrest and scared my mummy very much she had to work really hard to get me breathing. I was scared to I didn’t know what was happening but I really struggled and had to go back to hospital.
1 week later it happened again so we had to go Manchester and I was put into oxygen and had to have loads of test.
There they found I had tracheamalasia and broncamalsia they were gonna put me on a trachy we stayed there 3 months altogether and after a few more tests they found I had transposition of the arteries and that was putting pressure on my tracheal, I was transferred to alderhey were I had to have heart surgery to snip and pin these arteries back. I was discharged home and 11 days later I had a severe respiratory arrest that very nearly turned into cardiac arrest I was put on a ventilator into a coma and transferred over to Manchester. We stayed in intensive care for 8 days and back on the ward for 3 weeks. My mummy was told with my condition I could stop breathing at anytime and I have to be monitored at home. So now we have a silly machine that makes loud noises lots of times through the night�
Me and my mummy have been home since July over the summer months my mummy’s been able to take good care of me but now it’s getting cold I have started to get a bit poorly again.
I am 11 months old and I can’t move my body voluntarily at all my mumy has been worried for a while but the doctors kept saying “she was born early and has downsyndrome”.
Last week my mummy was told I have cerebral palsy dystonic cerebral and I’m quite severely affected my mummy was devastated she cried lots and cuddled me lots I don’t really know any different but my mummy is thinking about my whole future. I am Bonnie-Lyn I am 11 months old and I have 2 disabilities. I have a loving family so no matter what I know I am gonna be happy �
This page has been set up by my nanny to try and improve my quality of life through stem cell treatment is used to repair some of the damaged cells that effectively has caused my cerebral palsy. I am hoping that with this treatment I will be able to have a full life being able to join in with my older brothers and sisters playing and having fun. I am just asking if anyone is able to donate just a little, as the treatment is extremely expensive and my family cannot pay for it alone. Any little donation will help me loads and your kindness will help me to have the best chance at a full life.
Organizer
Sylvia Calver
Organizer
England
