United for Noah Kai!
Donation protected
Welcome to United for Noah,
A donation page dedicated to Noah Kai, an affectionate and strong-willed boy who was born on December 24th, 2015 and diagnosed with microcephaly at birth. Microcephaly is a devastating and very rare birth defect. A microcephalic baby has a head and a brain that’s smaller than normal. This can create structural brain problems that cause a combination of other conditions such as seizures, epilepsy, feeding difficulties, increased movement of the arms and legs (spasticity), developmental delays relating to speech, standing, sitting and walking, intellectual disabilities, hearing loss, and vision problems. It robs babies born with this congenital defect from having a normal life as there is no cure, but Noah has the heart of a warrior, and together with his mother Kelly and friends, are united to do whatever it takes to alleviate the conditions associated with this disease.
Born in Hawaii, USA and currently living in Recife, Brazil, Noah is a joyful and happy 4-year-old who is curious, expressive and owner of the brightest smile you will ever come across, a smile so big and sincere that one cannot help but be captivated at first sight. He is dearly loved by his family and friends. Some of Noah’s favourite things are: visits to the beach, nature, birds chirping, and he is proving to be a real foodie. As Noah’s friends and family, we want him to live a long, happy and healthy life and we are ready to do whatever it takes to ensure he receives the best medical care, medication and necessary equipment available.
In early 2015, a widespread epidemic of Zika fever, caused by the Zika virus in Brazil, spread to other parts of South and North America and also affected several islands in the Pacific and Southeast Asia. In February 2016, the World Health Organization (WHO) declared the outbreak a Public Health Emergency of International Concern as evidence grew that Zika can cause birth defects as well as neurological problems. The virus can be transmitted from an infected pregnant woman to her fetus, then can cause microcephaly and other severe brain anomalies in the infant. Kelly, Noah’s mother was infected during the outbreak in 2015 and was the first confirmed case of microcephaly to be reported in the United States.
In 2016, Kelly and Noah moved back to Recife, Brazil to be with their family. To better assist with Noah’s daily care, she enrolled in university to study physiotherapy, and as a single mother tending to his needs while also finding the time to study, she can no longer hold a “normal” 9-5 job, but that hasn’t stopped her from applying herself in ingenious ways. Through sales of low-cost physio equipment to families of modest means, she keeps forging ahead to provide financially for their needs. However, despite her determination, the costly treatments and equipment needed to ensure Noah’s continual development are more than a middle-class family in Brazil can ever achieve.
Noah needs to undergo different types of therapy regularly. These therapy sessions and the costs of equipment and medication add up quickly since they are ongoing due to the nature of his condition. Noah’s annual care comes at 100k.
Therapy Sessions:
- Motor physiotherapy 3x week
- Hydrotherapy 2x week
- Respiratory physiotherapy 1x week
- Occupational physiotherapy 3x week
- Speech therapy 3x week
- Visual stimulation 3x week
- Cuevas Medek Exercises (CME) every 4 months
- Nutritionist every 3 months
Medications:
- Lamitor *anticonvulsants.
- Cannabidiol
- IV drip
- Annual health plan
Equipment:
- Orthopedic footwear
- Hygiene and toileting chair *Tilt HTS Rifton
- A specialized stroller for postural control *Leckey Mygo seat
Any help you can provide goes a long way! Please consider sharing this campaign with family and friends through social media and any other means you feel comfortable with. We are very grateful to all those who took a few moments in their day to visit Noah’s campaign!
A donation page dedicated to Noah Kai, an affectionate and strong-willed boy who was born on December 24th, 2015 and diagnosed with microcephaly at birth. Microcephaly is a devastating and very rare birth defect. A microcephalic baby has a head and a brain that’s smaller than normal. This can create structural brain problems that cause a combination of other conditions such as seizures, epilepsy, feeding difficulties, increased movement of the arms and legs (spasticity), developmental delays relating to speech, standing, sitting and walking, intellectual disabilities, hearing loss, and vision problems. It robs babies born with this congenital defect from having a normal life as there is no cure, but Noah has the heart of a warrior, and together with his mother Kelly and friends, are united to do whatever it takes to alleviate the conditions associated with this disease.
Born in Hawaii, USA and currently living in Recife, Brazil, Noah is a joyful and happy 4-year-old who is curious, expressive and owner of the brightest smile you will ever come across, a smile so big and sincere that one cannot help but be captivated at first sight. He is dearly loved by his family and friends. Some of Noah’s favourite things are: visits to the beach, nature, birds chirping, and he is proving to be a real foodie. As Noah’s friends and family, we want him to live a long, happy and healthy life and we are ready to do whatever it takes to ensure he receives the best medical care, medication and necessary equipment available.
In early 2015, a widespread epidemic of Zika fever, caused by the Zika virus in Brazil, spread to other parts of South and North America and also affected several islands in the Pacific and Southeast Asia. In February 2016, the World Health Organization (WHO) declared the outbreak a Public Health Emergency of International Concern as evidence grew that Zika can cause birth defects as well as neurological problems. The virus can be transmitted from an infected pregnant woman to her fetus, then can cause microcephaly and other severe brain anomalies in the infant. Kelly, Noah’s mother was infected during the outbreak in 2015 and was the first confirmed case of microcephaly to be reported in the United States.
In 2016, Kelly and Noah moved back to Recife, Brazil to be with their family. To better assist with Noah’s daily care, she enrolled in university to study physiotherapy, and as a single mother tending to his needs while also finding the time to study, she can no longer hold a “normal” 9-5 job, but that hasn’t stopped her from applying herself in ingenious ways. Through sales of low-cost physio equipment to families of modest means, she keeps forging ahead to provide financially for their needs. However, despite her determination, the costly treatments and equipment needed to ensure Noah’s continual development are more than a middle-class family in Brazil can ever achieve.
Noah needs to undergo different types of therapy regularly. These therapy sessions and the costs of equipment and medication add up quickly since they are ongoing due to the nature of his condition. Noah’s annual care comes at 100k.
Therapy Sessions:
- Motor physiotherapy 3x week
- Hydrotherapy 2x week
- Respiratory physiotherapy 1x week
- Occupational physiotherapy 3x week
- Speech therapy 3x week
- Visual stimulation 3x week
- Cuevas Medek Exercises (CME) every 4 months
- Nutritionist every 3 months
Medications:
- Lamitor *anticonvulsants.
- Cannabidiol
- IV drip
- Annual health plan
Equipment:
- Orthopedic footwear
- Hygiene and toileting chair *Tilt HTS Rifton
- A specialized stroller for postural control *Leckey Mygo seat
Any help you can provide goes a long way! Please consider sharing this campaign with family and friends through social media and any other means you feel comfortable with. We are very grateful to all those who took a few moments in their day to visit Noah’s campaign!
Organizer
Udnei Guerra
Organizer
Toronto, ON
