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M&M for kids with special needs

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My two children Madison and Mason were born with a very rare blood disease called Nijmegan Breakage Syndrome.  We were unaware that we both were recessive gene type carriers of NBS.   The way chromosomes work we had a 25% chance of reproducing a child with NBS. Sadly, we ended up with two. Despite the initial sadness this situation has taught me to enjoy every moment life has to offer. We laugh every day and do our best to enjoy the day.  The major concern we have for our children is they lack the ability to produce the proteins essential for white blood cell re growth. This puts them in a high risk category for leukemia and lymphoma. Their life expectancy is early adolescence. Their are many other symptoms of the disease and there is no cure.  Early detection has helped to prevent putting our children in harms way. Radiation is one of the concerns we have to deal with. It has been my goal to build a field house and indoor pool for them to enjoy physical activities so they are not in the harmful rays of the sun.  Unfortunately, I have not been able to achieve this goal on my own. I would like to build a facility for my children and others with the similar conditions to enjoy. My hope is to help make every day matter with some fun indoor activities that do not cost families with special needs to enter.  Medical expenses can make things very difficult for families to afford some indoor fun. I would like to raise the money by May 19th 2018. If we don't reach our goal the money will be donated toMake a Wish.   I appreciate your time and any donation.

Donations 

  • Todd Bank
    • $25 
    • 6 yrs

Organizer

Dan Dixon
Organizer
Shorewood, IL

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