We did not start the year off good. She ended up going into Urosepsis from a UTI. She needed her breathing tube back in on January 4th. After fighting so hard the month of December, Maeve did not have it in her to fight this time. She was put on ECMO on January 6th. By the grace of God, she was a miracle and was able to come off ECMO on January 15th without any serious complications. She had her breathing tube removed once again January 31st. Two weeks later, her body did not handle some of her drug weans. She had to get her breathing tube put back in from February 13th to February 23rd.
Since February she has been improving by leaps and bounds. She had her PICC line removed on her 8th month Birthday. She is weaning off her drugs, and each day she is getting healthier and stronger. She is also getting full feeds via her NG tube. We still have a ways to go until she comes home. We have a lot of drugs to wean still as well as her oxygen. During all of this, Maeve's Omphalocele has taken a back seat. Eventually when her abdominal cavity is big enough, she will need corrective surgery (anywhere between 1-5 years old).
We are asking for donations to help with her medical expenses including her insurance out of pocket maximum and medical supplies. The donation will also help go for travel expenses since Maeve is a hour away and help cover time away from work when she comes home to take her to her doctor and therapy programs. In addition, Maeve has a severe oral aversion. Eventually when she is on a low enough flow of oxygen, she can start to work on eating orally. We would like to have her participate in the Growing Independent Eaters program which is a significant added expense.
If you are able to help in any way, we would greatly appreciate it. We would also appreciate any prayers and well wishes as we continue on this long journey to healing.
Thank you for all the support!
- Love, Maeve
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- Missouri Baptist RNFAs
- Kristi Klinger
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