Mighty Maeve's Medical Expenses

Mighty Maeve Ruth was born on September 14th, 2020 with an abdominal wall defect called an Omphalocele. Her small bowel, liver, and stomach are in a sac outside of her abdomen. Because she did not have her abdominal organs in her belly during fetal development, she also has under developed lungs. She surprised us when she came out crying and defying all the odds. She was a fighter. She did end up needing oxygen but for the most part did amazing for her first NICU stay. She was discharged on November 10th, 2020. She spent one amazing week at home. On November 18th, 2020, she got readmitted to the hospital for a partial bowel obstruction. Things took a turn for the worse at the end of November, and she started needing more oxygen. She was moved to the PICU. She continued to decline so on the night of December 3rd she was moved back to the NICU. She ended up becoming septic from bacteria that leaked out of her bowels that were not working. She was touch and go all night and ended up being intubated.  She started to improve, but on December 11th she had another day where she became critical. At this point, they started talking about needing ECMO. Luckily she was a fighter and pulled through. She was extubated on December 28th. 

We did not start the year off good. She ended up going into Urosepsis from a UTI. She needed her breathing tube back in on January 4th. After fighting so hard the month of December, Maeve did not have it in her to fight this time. She was put on ECMO on January 6th. By the grace of God, she was a miracle and was able to come off ECMO on January 15th without any serious complications.  She had her breathing tube removed once again January 31st. Two weeks later, her body did not handle some of her drug weans. She had to get her breathing tube put back in from February 13th to February 23rd.

Since February she has been improving by leaps and bounds. She had her PICC line removed on her 8th month Birthday. She is weaning off her drugs, and each day she is getting healthier and stronger.  She is also getting full feeds via her NG tube.  We still have a ways to go until she comes home. We have a lot of drugs to wean still as well as her oxygen.  During all of this, Maeve's Omphalocele has taken a back seat. Eventually when her abdominal cavity is big enough, she will need corrective surgery (anywhere between 1-5 years old). 

We are asking for donations to help with her medical expenses including her insurance out of pocket maximum and medical supplies. The donation will also help go for travel expenses since Maeve is a hour away and help cover time away from work when she comes home to take her to her doctor and therapy programs. In addition, Maeve has a severe oral aversion. Eventually when she is on a low enough flow of oxygen, she can start to work on eating orally. We would like to have her participate in the Growing Independent Eaters program which is a significant added expense. 


If you are able to help in any way, we would greatly appreciate it. We would also appreciate any prayers and well wishes as we continue on this long journey to healing. 

Thank you for all the support!

- Love, Maeve 
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  • Missouri Baptist RNFAs 
    • $100 
    • 17 d
  • Anonymous 
    • $100 
    • 25 d
  • Anonymous 
    • $10 
    • 26 d
  • Kristi Klinger 
    • $25 
    • 1 mo
  • Anonymous 
    • $200 
    • 1 mo
See all

Organizer

Sarah Ream 
Organizer
Wentzville, MO
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