Shaun was having double/blurry vision off and on for months. After having an MRI and CT scan, it was revealed he had a tumor on his skull. He had his first surgery to remove the tumor in June, 2017.
When the pathology report came back and said it was a chordoma tumor, I began to do research. We learned chordoma is a rare (one in a million) type of malignant cancer. I started talking to others who had been affected by chordomas and realized we needed to send his scans to Dr Gardner, a chordoma specialist, for advice on how to proceed with treatment. By looking at the pre and post op scans, he says Shaun will need another surgery to remove the entire lesion before he can begin his radiation treatment in Boston, MA.
So, in a few weeks, we will be packing up the kids and go to Pittsburgh, PA for a few weeks for a second surgery. He will once again be off work for another 4-6 weeks while healing. Then, three months after surgery, we will relocate to Boston, MA for a few months. Here, he will receive proton beam therapy, which is a specialized radiation that is only available far from home. Shaun is the sole provider for our family. I stay at home and homeschool our three children. We will not have income for the times he will need to be off work.
The money donated will cover our monthly expenses. No amount is too small. We greatly appreciate any help.
Please, if you don't mind, share this with family and friends. More than anything, we want to spread awareness and share information on this rare type of cancer, chordoma, to others.
Shaun and Amy
- Tracy Kuper
- Missy Krempp
- Shawna Robertson
- Regina and Dave Thomas
- Allison Gehlhausen
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