Fundraiser For Mission For Mikayla

Mikayla Skye Campbell was born on June 4, 2010 weighing 7 pounds, 4 ounces and was 21 inches long.  Her mother, Cami was elated when Mikayla joined the world.  Over the course of her first 4 years, Mikayla became ill, and started to miss her developmental stages, specifically,  mental and movement abilities, which is also known as psychomotor regression.  In addition to walking late and an under-developed sense of strength, she also was unable to use the bathroom and on bad days unable to move.  After multiple visits to doctors and specialists, around the state, Cami and Mikayla, were referred to a neurologist.  Mikayla underwent an MRI and a spinal tap.  Unfortunately, to no avail, these tests came back inconclusive.  A muscle biopsy was finally done, which showed and confirmed that Mikayla, age 4, at this time, suffered from a severe but rare mitochondrial disease, called Leigh’s Syndrome.  Leigh’s syndrome is a rare, neurometabolic disorder, which is characterized by the degeneration of the central nervous system.  Shocked and saddened, and of course, a parents worse fear, Mikayla was taken to the Children’s Hospital of Philadelphia, which is the nation’s first hospital devoted exclusively to the care of Children.  Ever since Mikayla’s diagnosis, Cami and Mikayla fly up routinely to meet with her assigned team of doctors at CHOPs to help maintain Mikayla’s quality of life.  In addition to her visits to Philadelphia, she also sees numerous doctors in the State of Florida (her Hometown State).  Unfortunately, due to the demands of Mikayla’s syndrome, Cami has had to stop working, to be by the side of her daughter.  Although healthcare coverage does assist in helping cover some medical expenses, she also has the out of pocket expenses of travel, room and board and day to day life. Along with medicine insurance doesn't cover which is a lot. Their yearly average for co pays and travel expenses with out including hospital stays and add on's is over a normal house hold income. That only covers therapies and routine weekly doctor visits, and some medicine. They are in a battle right now to get Social Security disability and Medicaid help for Mikayla to off set co pays. There is no cure for Leigh’s Syndrome, and cannot predict life expectancy as organs and respiratory failure commonly happen.  Will all that said, Cami and her family are keeping strong in the hopes that medical breakthroughs will become available to help maintain and improve Mikayla’s quality of life.  All funds donated will be used directly to help with hospital & medical bills, towards a van that can help with travel caring Mikayla's medical equipment, living expenses, and maintaining the best quality of life for Mikayla.   It is a daily struggle. Anything will help towards their goal of getting Mikayla to her team at CHOPS this year, and her new medicines insurance will not cover right now.  Thank you and God bless.  It is a long costly fight. We wanted to put this together for her family and try to get as much relief for them to help Mikayla as they can.