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Medical and Travel Expenses for Victoria Chase

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hello everyone. My name is Jotannah Davis-Morin.This is my 12 year old sister Victoria Chase. Victoria has always had a rough life since birth. She was born 14 weeks premature weighing 1lb 4oz. She is a living miracle and such a blessing to our family. While living in the NICU in Fargo, ND for the first 7 months of her life, she faced many medical problems.She had 12 surgeries while in the NICU from ShortBowel Syndrome, where majority of her small intestine was removed. She was on a colostomy until a couple months before released. Her eyes were not developed at birth, causing her to have severe eye problems since, she started wearing contacts at 2 years old and still does. She had a feeding tube from birth until December 2018 where she battled through a feeding disorder clinic to have it removed as long as she can maintain weight gain. She was diagnosed with Klippel-Trenaunay syndrome (KTS) (is a rare congenital vascular disorder in which a limb may be affected by port wine stains (red-purple birthmarks involving blood vessels), varicose veins, and/or too much bone and soft tissue growth. The limb may be larger, longer, and/or warmer than normal. The cause is unknown. ) There was many times we were told she would not survive or make another night while in the NICU. Throughout her childhood she was diagnosed with sensory processing disorder and ADHD. Everything was going okay untilJune 22, 2019. Victoria had her first seizure. Since July she has been traveling to pediatricians, neurologists, cardiologists, neuro-physciatrists, psychologists, and now currently has a team of Drs in Rochester at Mayo Clinic. Her diagnoses is unknown. They don’t know why she had the seizure, they don’t know why she has abnormal CT scans, EEG, EKG, MRI’s. This was why she was sent to Mayo to see what’s going on and come up with a diagnose. She has been suffering severe headaches, blackouts, seeing things and people, she is scared to leave the house, she’s suffering with short term memory loss, and she’s constantly asking why this is happening and why they can’t find out what’s wrong with her brain. My mother Valarie Davis is a single mother whom lives on a fixed income. If anyone knows, it is costly to constantly be living out of a bag, hotels, and car when you have a child with so many medical needs. (Her middle child and grandson also requires many medical appts). I am asking you to donate what you can to help relieve some stress on my mother and sister because they will currently be in Rochester until January 8th, 2020. It is unknown if they will stay longer as they get through all testing, procedures and results. Along with trying to upkeep on her bills to keep her home. Anything and everything is more than greatly appreciated. And thank you to each and everyone of you that can help out what you can. 

Organizer

Jotannah Davis
Organizer
Belcourt, ND

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