Madelynn Rae Millis

As many of you may remember four years ago we lost Tessa Maree at six months of age.  What we didn’t know then was that she had an extremely rare disease, Pontocerebellar Hypoplasia (PCH6) Type 6.  Her little sister, Madelynn Rae has recently been diagnosed with the same rare disease.  This disease, unfortunately claims children generally at infancy.  Madelynn Rae has started to demonstrate the same pattern of symptoms...seizures, apnea and just recently lost of suckling/eating.  As you can imagine, the girls parents and family are devastated with this prognosis.

This fund will be used to allow Madelynn Rae to be placed in eternal slumber with her angle sister Tessa Maree.  Please only give if set on you heart to do so...our main request is for prayers and positive vibes.  These sweet girls were given to us as such blessings...we pray for everyone touched by their sweet smiles!

Thank you ❤️