Maddi has worked hard to manage her disease with a joyful, "can do", positive attitude! Maddi's daily routine includes four breathing treatments and Chest PT and taking over 20 maintenance mediations. She is hospitalized frequently and continues IV antibiotics at home after each hospitalization. Her health declined so significantly over this past year that she has had to be home bound for most of her Senior Year in High School, but despite these obstacles she is looking forward to graduating with her class in May!
Maddi has been advocating and raising money to find a cure since she was a little girl, hosting her first event at seven years old. Since that time, Maddi has held many more fund raising events and spoke at several events hosted by the Cystic Fibrosis Foundation - Illinois Chapter. Maddi was the first kid and CF patient to complete the Xtreme Hike: a one-day 21 mile hike through the Manistee National Forest. Her strong will and determination carried her through once again!
The Cystic Fibrosis Foundation is closer than ever to finding a cure, but it has not come in time for Maddi.
After battling this disease for 18 years, Maddi is now in need of a double lung transplant. She was listed for transplant in February and we now await that life saving call.
The recovery after lung transplant can be long and difficult that will require specialized medical care. The fund will not only help pay for expenses for lung transplant that are not covered by insurance, but it will also help Maddi pay for the long term medical care she will need after transplant.
Maddi's joy is infectious and she has been a blessing to many throughout her life. She has big aspirations for the future, and we are praying that the transplant will give her a second chance at life and opportunity to pursue her dreams! It is with sincere gratitude and heartfelt thanks that we ask you to consider donating to Maddi's fund. As Maddi's mom, this is a need that I never anticipated that she would have, but I have hope for her future. Please consider passing on this campaign to others who might be interested in supporting Maddi as well. Thank you again for your support! We are truly grateful!
- Laura and John Connelly
- Oksana Beck
- monica mullen
- Cathy O'Malley
- Bridget Neam
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