This is a video of me playing with my mom. ⬇️
(Please read this campaign all the way to the end. Thank you very much for stopping by.)
What is Congenital Melanotic Nevus?
Congenital Melanotic Nevus is a skin condition characterized by an abnormally dark skin patch (a nevus) that's composed of pigment-producing cells called melanocytes. It is present from birth (congenital) or is noticeable soon after birth.
In my case, the nevus was noticeable when I was born. My mom and the doctors were shocked because they weren’t expecting it at all. Also, the doctors weren’t even sure what the dark patch was until 4 days after I was born. Through my mom’s extensive research and all the doctor’s tests, they discovered that I had nevus.
The sad part is that babies with giant congenital melanocytic nevus have an increased risk of developing an aggressive form of skin cancer called melanoma. This is a rare disease that affects only 1.5% of the world population.
The Painful Side Of Having A Rare Disease...
On top of that, people like me with large moles get more than their fair share of looks, stares, whispers, and finger-pointing. It is heartbreaking for my parents and it can have a devastating effect on me as I grow up. I need your help because I want to be a normal kid and have a normal life. I hope this doesn’t sound like a lot to ask.
There is no cure for Nevus and there’s no magic treatment. The best option is the Nevus removal through surgeries. A bunch of surgeries, actually.
After consulting with the best doctors and weighing the psychological impacts and health issues, my parents decided to start the surgeries asap, since the babies skin recovery much faster than an adult. We’re not sure how many surgeries I need. Everything will depend of the doctor. But at least 6 surgeries will be needed.
The Bright Side Is That I Was Blessed With Loving Parents...
God blessed me with loving and caring parents that have worked hard to give me the best life possible. Since I was born, my mom and dad have worked tirelessly to make sure that I felt loved and supported. They also want me to live a normal life just like every other kid my age.
How Can You Help Me?
Each surgery will cost around $40.000 plus additional costs such as accomodations in another city, flights, and regular expenses for an entire 2 months while my parents are taking me to the doctor's office for revisions. The total cost for each surgery (with travel expenses included) will be around $48,000 and that’s why my friend’s created this campaign.
Great progress is being made by the donations and support I’ve received so far. I’m beyond grateful for everyone that has supported my cause. And I had help from the media and all my new friends that are supporting me and sharing my story via my Instagram account @luna.love.hope.
But it's still a long road to get to the money for the first surgery.
I’d be forever grateful to you if you can find it within your heart to help me get started with my treatments/surgeries or at least share with your contacts.
Please donate now to help me have a better life. We are close to reaching our goal, but I can’t do without you.
By choosing to donate to Luna Love Hope you join me on my fight to live a normal life. Hopefully, you also feel that I should grow up without the fear of possible cancer from my condition and the negative self-image that can hurt my chance for a normal life.
Will you help me with a donation? Please, click on the DONATE NOW button on the right side ➡️ and donate today. Any amount counts. If you cannot donate please share the link on your social media. If you can follow us on our instagram!!!
Luna Fenner, Carol Fenner and Thiago Tavares
- Antonet Zaikova
- Marla Stafford
- Agnes Wibell
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