Lucy's legal drugs fund

I'm Lucy, a 40 year old mum of 2 beautiful daughters (7 & 2). In May 2019 I received the devastating diagnosis of Stage 4 bowel cancer that had spread extensively throughout my liver. I also have a very rare mutation that makes my cancer very aggressive.  At the time I was given a best case scenario prognosis of 20 months, which will take me to this December. But I am desperate to beat this for the sake of my girls and my wonderful husband Iain.

For a while I had some success with treatments available through the NHS and my private healthcare. I enrolled on a trial in July 19 and the triplet of drugs I was given reduced the cancer greatly. Unfortunately it stopped working after 3 months.  I then switched to chemo, and had another good response.

At the beginning of this year we were feeling hopeful and I took a chemo break to see if surgery might be an option.  Sadly the tumours in my liver started growing back.  I was offered a radiotherapy treatment called SIRT, but this failed and I had even more growth in my liver.

In May I went back on chemo, but this stopped working at the end of July.  I have now gone back on the targeted therapy I was on last summer, but we don't expect this to work for more than a couple of months if at all. I'm basically running out of options.

I had some molecular testing done, and it showed that my cancer is highly mutated. This leads my oncologist to believe that immunotherapy might work for me, but unfortunately it is not approved in Europe for my type of cancer. When immunotherapy works it can be a game changer, and unlike chemo, could potentially be curative. 

For the sake of my daughters, I have to try everything I can to have more time with them, but the cost of the immunotherapy drug that I will have to self fund is an eye-watering £6k every 2 weeks!

I would be so grateful for any help that you can give me.  If it works I could be taking this drug for years.  If it doesn't I will invest the money in any other medical options, or if the worst was to happen we will donate the money to bowel cancer UK to try and make sure other young mums' don't have to go through this.

Thank you for any support you can offer.

Lots of Love

Lucy, Iain, Aoife and Enid x

Donations

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  • Anonymous 
    • £20 
    • 26 d
  • kim hutcheson 
    • £20 
    • 27 d
  • Stewart Edge 
    • £9 
    • 1 mo
  • Helen Lewis 
    • £10 
    • 1 mo
  • Sandor van Mil 
    • £300 
    • 1 mo
See all

Organizer

Lucy Ogilvie 
Organizer
London, Greater London, United Kingdom
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