Luci's Little Heart

My granddaughter Luci Pearl Stanley was born on May 19, 2018.  Jacklyn and her husband Matthew have tried for several years to have a baby only to endure multiple miscarriages.  Luci was born with the Congenital Heart Defect Tetralogy of Fallot with Pulmonary Atresia, Ventricular Septal Defect and MAPCAS(TOF/PA/VSD/MAPCAS).  Luci was born without a pulmonary artery so instead she has Major Aortopulmonary Collateral Arteries(MAPCAS).  She is truly our family’s miracle baby, but she cannot survive without surgery.  There is one doctor in the US that pioneered the unifolcalization surgery and he is located in California.   Before she can go to CA, she is set have surgery at University of Virginia (UVA) on July 24, 2018, to remove a meningocele that is located at the base of her head. Following this she will need a heart catheterization at UVA to determine where her MAPCAS are. Jacklyn had to resign from her job in order to take care of Luci.  Luci could be in the hospital for up to twelve weeks or more.  Matthew will have to take leave without pay from his job to be with his family.  They have shown such faith and strength though all of this, but to make this journey, to save their daughter’s life, we are asking your help to pay for the expenses that will incur from their hometown in Virginia to Stanford, California. My daughter has set up a Facebook page to follow Luci in her heart journey at https://m.facebook.com/lucislittleheart/