Camden O'Rear's Medical Expenses
Donation protected
On Sunday Febuary 1st at 1am, Tim & I took Camden to the ER at FSH for congestion,cough and heavy breathing. From there, we were transported to Hopkins by ambo. 3 days in counting and we will not leave his side until we all go home together. Camden is being treated for pneumonia along with having a neuro team look at him. He has been such a trooper through all this. Upon some tests, they discovered It's a 99% chance that Camden has SMA ( Spinal Muscular Atrophy ). We pray the last test the DR did will be a miracle and that this DR is wrong. This is a rare recessive genetic disorder and as of now they are doing research but no cure. Most babies that are diagnosed at this age do not live to see their first birthday. However, Camden will be the miracle that does. We will do all the therapy and traveling for research that it requires for our baby. We will continue to live our lives as we normally do, just give Camden some extra love each day. If that is even possible with the love he already receives. We are so very thankful for our support system. Our families are so amazing and we have such a great group of friends and co-workers. We need all the prayers we can get!
Organizer and beneficiary
Jenn Phillips
Organizer
Baltimore, MD
Robyn O'Rear
Beneficiary