Lets help the 5 year old Eda Loshi
Donation protected
Eda Loshi, 5 years old, from Pristina, has been diagnosed with rare genetic disease, Spinal Muscular Atrophy (SMA) SMN1 and SMN2. It is a genetic disease that causes progressive neuromuscular disorder where the nerve cells that control the muscles (motoneurons) are affected.
Without treatment, symptoms of this disease begin to appear before or after the 6th month and continue with worsening muscle weakness and loss of muscle tonus. Without proper treatment, the condition of patients with this disease worsens to total impossibility of movement, difficulty breathing, etc.
Treating this disease is very expensive and the little Eda family needs your help as the disease needs to be treated abroad. Below you can also find the bank account number you can help with as much as you can.
Also all those who want to contribute to Eden from countries outside Kosovo, here you can find the bank information:
Raiffeisen Bank Kosova
Njomza Rukovci
SWIFT code: RBKOXKPR
Account number with IBAN XK051501140001210485
Pay Pal at:
[email redacted]
Without treatment, symptoms of this disease begin to appear before or after the 6th month and continue with worsening muscle weakness and loss of muscle tonus. Without proper treatment, the condition of patients with this disease worsens to total impossibility of movement, difficulty breathing, etc.
Treating this disease is very expensive and the little Eda family needs your help as the disease needs to be treated abroad. Below you can also find the bank account number you can help with as much as you can.
Also all those who want to contribute to Eden from countries outside Kosovo, here you can find the bank information:
Raiffeisen Bank Kosova
Njomza Rukovci
SWIFT code: RBKOXKPR
Account number with IBAN XK051501140001210485
Pay Pal at:
[email redacted]
Organizer and beneficiary
Alban Rukovci
Organizer
Troyes
Alexandra Elvira Irngard
Beneficiary