Prior to CRPS, Kyle was very VIBRANT, active and HE LOVED sports! He played basketball, soccer, and was on a competitive Skeet Shooting Team. All these activities made him happy and SMILE. CRPS stole this from my son! ￼ ￼ KYLE IS 14 YEARS OLD. He's my first born and I look up to him... he is 6'2.5" and still growing. He is in 9th grade at Grove School in Paris, TN. Kyle was diagnosed with Complex Regional Pain Syndrome (RSD, and also known as the Suicide Disease) in September 2017. He's had feet pain for the last 3 years. He suffered an injury during basketball that left him in a boot. He fell while wearing the boot injuring his other foot. After podiatrist, Ortho, then rheumatoid doctors, and countless physical therapy sessions, Kyle was diagnosed with CRPS. It is now goes up to his knees and hands. His hands and feet sweat alot which causes them to peel. He has chest pain also. He is constantly in pain, and it has taken his spirit and smile away. Complex regional pain syndrome is THE MOST PAINFUL!! THERE IS NO CURE!!! It is nicknamed the SUICIDE DISEASE! Sadly, Kyle admitted in June, that he couldn't handle the pain anymore and wanted to end things. Thank God, his friend told me. I reacted quickly and got him help immediately. He now has in home counseling weekly which is helping, but he is really depressed.
What’s CRPS in a nutshell? It means either localized or widespread excruciating, debilitating pain coursing through your body. Most adults can't stand the pain, let alone a child or teen. PAIN ... Every moment. Of every day. (CRPS), also called reflex sympathetic dystrophy syndrome, is a chronic pain condition in which high levels of nerve impulses are sent to an affected site. People with CRPS also experience changes in skin temperature, skin color, or swelling of the affected limb. This is due to abnormal microcirculation caused by damage to the nerves controlling blood flow and temperature. As a result, an affected arm or leg may feel warmer or cooler compared to the opposite limb. The skin on the affected limb may change color, becoming blotchy, blue, purple, pale, or red. ￼ ￼ ￼ The McGill Pain Scale lists CRPS HIGHER than Childbirth or Amputation!!! It is higher than cancer pain. ￼
As a parent, you are desperate to find something to take away the pain and torture your child is living with day in and day out. It's hard to trust what is truly a trustworthy medical treatment or just a ploy to get you to buy a gadget that is worthless. This is the hard part. I passed on the Vecttor. There just isn't much negative reviews out there. There should be a few. The company doesn't let you sell the machine if it doesn't work for you. That just doesn't sit right with me. So, we are now looking in to other therapies to get Kyle into remission!! Ketamine infusions are another option. As a parent, you hate to see your children in pain. I wish I could bear his pain for him. It breaks my heart to see him cry in pain, miserable, and constantly being in pain. There is no medicine as of yet that has touched his pain. Everyday he is in an 8 or above from 1 to 10 pain scale. This mama is crazy about her now 15 year-old son. I'd go to the moon for him if I could. I thank you for visiting our Gofundme page. We have never asked for donations in the past. We need your help. Any donation even $5 or $10, we'd be so GRATEFUL. ...and if you can't donate, we'll happily accept good vibes, thoughts, prayers, and wishes. We are so grateful to everyone in our lives for their love and support. We would really appreciate it if you could please share his story. It would mean the world to us! From the bottom of my heart, thank you for your love and support!
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