ENGLISH AND SPANISH-THANKS FOR TAKING TIME TO READ AND HELPING
Diffuse Intrinsic Pontine Glioma How does a 5yr angel battle a rare cancer monster... I don't even know where to start telling you of our life changing event. My son had a routine appointment on the 31st of December 2014 but i also saw something was wrong that i wanted to mention to the doctor. I saw his legs were weak and most of the time he was tripping, the drooling was getting worst and couldn't swallowed his food or drink like before. The worst of all is that I couldn't understand what he said when talked. The doctor at the pediatric noticed all these symptoms and were very concerned. That same day they decide to send me to the ER in an ambulance in my heart i knew something was wrong at that moment.
We got the hospital, first thing they did was a catscan and asked me all these questions. Eventually the results were in an hour or so. I never thought i would hear what that doctor said. He told me that my child had a mass in his brain thats is making him not function like hes suppose to like normal 5 year old. I heard it and my heart came out of my chest. That is all he could tell me at that time but in his eyes i knew it was more than a mass on his brain. We waited another hour hour so ...then they decided to put him upstairs to do an MRI on him. I was still hopeful that surgery was the way..they were going take it out and that would be all my son will be ok.since my brother went through cancer as well and hes still with us and I try to sleep thinking that everything was going to ok.
I woke up the next day still in the hospital the first thing was that the doctor wanted to talk to me i knew it wasn't good. He told me "i wont lie to you but keep calm...your son has a Diffuse intrinsic pontine glioma..which ment he has a brain tumor on the brainstem the size of a tennis ball and until this day there is no cure for it." When i heard that I didn't know what to do with myself, I cried, I screamed I cursed at GOD and no one was there to hold me tight. It's not fair that this is happening to a 5 year-old he life is just starting. I called my family,they came and when every one heard what was happening they were devastated, we just couldn't believe it. I saw the mri of his brain and it was true..my son has the tumor in his brain and that's when i actually realized that it was true. When i was more calm first thing that the neurologists and oncologists said that the cannot do surgery, can't even get a sample of the tumor cause its so risky. Chemotherapy was out of the picture cause they know it doesn't work on that type of tumor. They explained that the tumor is making my child's motor skills declined. He's legs were weak , the drooling, his speech, the trouble eating and drinking. The only thing that MAYBE or COULD work was radiation to shrink the tumor in my baby's brain. But eventually the body start building antibodies and it won't work anymore and the cancerous tumor will come back. I accepted whatever they were saying and agreed to start radiation for the next two months, five days a week. And now all i can hope for is for a miracle to happen.
I know for a fact that my 5 year old son could lose the battle against this cancer but i am going to give him all my love and support until the end. I had to leave my two jobs that provided for me and my kids since im a single mother, but it's ok cause the only thing i care about it to make my son happy and to be by his side everyday that he opens his eyes. I think is not fair that my child is going through this but i have HOPE. and maybe just maybe someone out there finds a cure for this tumor cause no one deserves to go through this pain especially a child.
NUNCA PENSE QUE MI HIJO ANGEL ESTE PASANDO POR ESTO. CUANDO LOS DOCTORES ME DIJERON QUE TENIA CANCER EN EL CEREBRO PENSE QUE TODO VA ESTAR BIEN. EL 31 DE DECIEMBRE IVAMOS A CELEBRAR EL ANO NUEVO FELICES CON ESPERANZAS DE DEJAR EL ANO VIEJO Y EMPEZAR UN OTRO ANO MEJOR. TODO SE DERRUMBO CUANDO ME MANDARON AL HOSPITAL DESPUES DE UNA SIMPLE RUTINA MEDICA. A ANGEL LE HICIERON TO TIPO DE EXAMENES DE CATSCAN Y MRI PERO LOS DOCTORES NO SE ATREVIAN EN DECIRME LO QUE TENIA. EL 1 DE ENERO 2015 ALAS 9 DE LA MANANA ME DIJERON. MI HIJO TIENE UN TUMOR CANCEROSO MALIGNO ENTRE LA ESPINA DORSAL Y EL CENTRO DEL CEREBRO QUE CONTROLA LA FUNCIONES DEL CUERPO. EL TAMANO DEL TUMOR ES TAN GRANDE COMO UNA PELOTA DE TENNIS. MI CORAZON SE ME CALLO..NOSABIA QUE ASER. LE GRITE A LOS DOCTORES QUE ME DESIAN QUE ME CALMARA...PREGUNTE QUE SI HAY UN DIOS VERDADERO PORQUE LE HACIA ESO A MI HIJO..SU VIDA APENAS ESTA COMENSANDO...MI FAMILIA NO LO PODIA CREER. LO PEOR ES QUE SOLO LA RADIACION FUNCIONA.QUE VA RECIVIR POR DOS MESES 5 VECES A LA SEMANA..PORQUE LA CIRUJIA Y LA QUIMOTERAPIA NO FUNCIONA. LOS DOCTORES NO HAN ENCONTRADO CURA. ..LA RADIACION SOLO ENCOJE EL TUMOR PERO NO LO ELIMINA...Y EL TUMOR VA A REGRESAR OTRA VEZ Y MAS AGRESSIVO Y POCO A POCO VOY A VER A MI HIJO DEBILITARSE. EL TUMOR VA IMPEDIR QUE CAMINE, HABLE,COMER,BEBER..TODO LO QUE UNA PERSONA ASE TODOS LOS DIAZ SIN PENSAR. YO Y MI FAMILA SABEMOS QUE A MI ANGEL VA A PERDER LA BATTALLA PERO VAMOS A SEGUIR LUCHANDO. ,,HASTA EL FINAL!!!! NINGUN NINO DEBE DE SUFRIR ASI....CADA DIA DE SU VIDA VA SER EL MAS FELIZ.