Konah needs treatment

In January 2016 Konah got a sore neck. Dr's told me it was "too much video games". Konah then started to lose the strength in his right arm and leg. Dr's told me "poor posture". In October 2016 Konah's speach was hard to understand, swallowing and the use of his tongue had become difficult so I took him to a different Dr who told me to wait for a referal in the mail.

Two weeks later Konah went to the dentist with sore teeth. The dentist told me to take him home and make phone calls because there's something really wrong with him. That day we managed to get a scan done at Fiona Stanley Hospital which showed a mass in Konah's head (in amongst his brain stem and crushing down on the top of his spine). Konah was sent straight to PMH. 
We were told that Konah has a Tumor called a 'Clivical Chordoma'. We were told that if they didn't get to it ASAP that Konah would be dead within the month. Konah had his first op' on the 11/11/16 at Sir Charles Gardener Hospital (through the back of his head). This op' went for 12 hours, and only 20% chance of survival. After that Konah could barely walk and lost the ability to swallow...he had to be fed through a nasal gastric tube and use a suction for his saliva.
Konah got stronger over the following months and on the 24/3/17 Konah was strong enough to undergo his second op' which they did through the back of his mouth. Unfortunately they could not remove all of the Tumor as it would be too dangerous due to the brainstem.  Scans did show that the Tumor had grown in between the two op's.

Konah now has to go to Florida USA for 'Proton Radiation Therapy', we don't know if it will help Konah but it is our best chance of keeping our son alive. We are aiming to send Konah there with his dad in early September 2017, the treatment goes for three months. We need your help.

Today Tonight have done a story on Konah which will be aired on Friday 11/8/17.
22882406_1502254288.8056_funddescriptionWe would really like to thank, dr Bala all the doctors nurses and staff at SCGH, and PMH. Richard Brown from Baldivis Family Dental, all our family and friends you know who you are. Without any of you Konah would not still be here and everyone that gives a little to help make Konah's treatment in USA possible. Thank you every single one of you thank you

Donations

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  • Anonymous 
    • $100 
    • 8 mos
  • Sam Harrison 
    • $41 
    • 19 mos
  • Anonymous 
    • $50 
    • 33 mos
  • Chrystal Stasenes 
    • $5 
    • 33 mos
  • Nicholas Gahan 
    • $25 
    • 36 mos
See all

Organizer

Shirlee Gedling 
Organizer
Baldivis, WA
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