As many of you may know already, 7 years ago I was diagnosed with Primary Vulvodynia. This condition is not widely talked about for obvious reasons, it is an embarrassing topic of conversation.
What I will tell you is that this condition causes extreme pain. I missed many days of high school and college because it hurt to walk or sit. I wasn't officially diagnosed until 3 months before our wedding.
I've done countless treatments and spent thousands of dollars to find relief. While some improvements were made, it wasn't enough to really improve my quality of living.
Moving to Austin was a wonderful opportunity to meet a new pelvic pain specialist who realized that there was something else going on. After getting opinions from 5 of her partners, they all agreed that I wasn't getting better because only part of the problem was being addressed.
Turns out I have a physical abnormality that needed to be surgically removed. I was thrilled to have found more answers and am extremely confident that this could eliminate the one hurdle I haven't been able to get past all these years.
Unfortunately my insurance coverage is not great and it is leaving me with a $5,000 bill.
I've maxed out my flex spending account and have spent over $1,000 already in 2018 on two nerve block treatments which didn't work. In 2017 we spent close to $5,000 on additional therapies, medication, and physical therapy appointments.
This surgery may very well be my last hope. A chance to have a family, be a better wife, and have a better quality of life.
Now that I’ve had a chance to recover, I’ve been approved to return to physical therapy and continue normal treatment. I explained to my doctors that I can’t afford to return to PT or see the gastrointestinal doctor recommended until we pay down this bill.
I know this surgery has made a difference, which is very exciting but I need to keep up with the other treatments in order to maintain that healthy tissue and muscle.
I dont like to ask for help and frankly I haven’t publically posted this for 30 days. It wasn’t until a complete stranger came upon my page, a fellow pelvic pain sufferer, that I decided to share it with you, my family and friends.
I'm a very open book about my condition and am happy to chat with any of you in greater detail about it. If you or a loved one is suffering from pelvic pain, know that there are options out there and it is a big deal.
I appreciate all of you and your support these last few years. Many of you have shared lots of tears and words of encouragement and for that I am forever grateful.
All my love,