Join Jonah's fight against Rare ETMR Brain Cancer
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UPDATE: On August 14, 2019, Jonah had a brain scan and doctors found new growth. His mommies are heartbroken by this news, but determined to continue to fight. They are exploring doctors and care options out of the country. The funds raised will help with travel and anything insurance won't cover. Thank you to everyone who has prayed, donated or sent kind words of encouragement. Your love and support is overwhelming.
Please help relieve some of the financial stress, on Jonah's mother, Suzy Amor, that comes with treating this type of aggressive early childhood brain cancer. Donations will be used to cover expenses such travel, flights, food, fuel and hotels for immediate family. Trips to Columbia in New York City and Michigan and Canada for trial treatments all place an unplanned burden on their budget. Let's at least take care of the basics for them and all make a positive difference for Suzy and Jonah!
Jonah's Story:
One Saturday morning, two months before his second birthday, Jonah Finn Armor suffered a prolonged seizure and partial paralysis. He was rushed to Boston Children’s Hospital, where an MRI revealed a brain tumor in his right parietal lobe. The tumor was completely resected, and cerebral spinal fluid showed no evidence of disease spread. However, on April 10, 2018, pathology revealed an Embryonal Tumor with Multilayered Rosettes (ETMR), an extremely rare tumor with a very dismal prognosis, even after gross total resection. The average lifespan after diagnosis is 8 months, but after 1 year and 3 brain surgeries later, Jonah is continuing to fight.
Please help relieve some of the financial stress, on Jonah's mother, Suzy Amor, that comes with treating this type of aggressive early childhood brain cancer. Donations will be used to cover expenses such travel, flights, food, fuel and hotels for immediate family. Trips to Columbia in New York City and Michigan and Canada for trial treatments all place an unplanned burden on their budget. Let's at least take care of the basics for them and all make a positive difference for Suzy and Jonah!
Jonah's Story:
One Saturday morning, two months before his second birthday, Jonah Finn Armor suffered a prolonged seizure and partial paralysis. He was rushed to Boston Children’s Hospital, where an MRI revealed a brain tumor in his right parietal lobe. The tumor was completely resected, and cerebral spinal fluid showed no evidence of disease spread. However, on April 10, 2018, pathology revealed an Embryonal Tumor with Multilayered Rosettes (ETMR), an extremely rare tumor with a very dismal prognosis, even after gross total resection. The average lifespan after diagnosis is 8 months, but after 1 year and 3 brain surgeries later, Jonah is continuing to fight.
Organizer
Phoebe Menzer
Organizer
Punta Gorda, FL