Lyndon Kloss' Conference Trip

Hello, my name is Lyndon Kloss, and I am 3 years old. When I was 3 months old my parents noticed me having seizures, and a few months later my family was worried about my focus and took me to the hospital again. They first told us that I have failure to thrive (underweight) and microcephaly (a small head/brain). Awhile after I ended up staying in the hosipital to get a G-Tube to feed me by a feeding pump. Awhile after they said that my eyes themselves were fine, but that they didn't think much was being relayed to my brain, but my hearing is exceptional and I rely on that most. One year ago I was finally diagnosed, it was very bittersweet for my family. I have something called Christianson Syndrome, and I'm at the worst end of the sprectrum. It is something that affects boys. I will never talk, right now I do not sit, crawl, stand or walk, but I do roll every once in awhile from back to front. If I do learn to do these things, some say I may regress. I have a very happy demeanor, and laugh for no reason (which my parents love). Unlike the other boys though, I get sick easily and a lot, and my parents miss a lot of work because of this. My parents want to learn more and they are holding a conference In Houston, Texas this July. For our family to go, it will cost around $5,000 and we were wondering if you would be willing to help us so we can go and learn more, and meet other boys with Christianson Syndrome. On top of everything we are trying to build a wheelchair ramp so we can get Lyndon in and out of the house without so much trouble.  Thank you all for taking your time to read this!

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Donations

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  • Becca needham  
    • $20 
    • 76 mos
  • Emily macdonald 
    • $25 
    • 76 mos
  • Lloyd & Lynda Plummer 
    • $25 
    • 76 mos
  • Kathy McDonald 
    • $25 
    • 76 mos
  • Anonymous 
    • $20 
    • 76 mos
See all

Organizer

Nikki Ferrow 
Organizer
Ingersoll, ON
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