Help this mom get better

I have a genetic medical condition called Ehlers-Danlos Syndrome, which causes my body to not produce connective tissue properly.  Our entire bodies are made of this.  It is an incurable disease that has impacted my life greatly, causing many complications, such as osteoarthritis, problems with my hips, hands, knees, and other joints.  It also causes problems with my blood vessels, autonomic nervous system, genitourinary system, digestive system, neurological problems, and more.   I have had many surgeries, been seen by dozens of doctors, and use a wheelchair as needed. Occasionally I also get cerebral-spinal fluid leaks, where the normally tough and durable dura gets holes due my my weak tissues.   Lately I have had symptoms of a leak, which has greatly impacted my quality of life.  I need to be on bed rest until it is better, because being upright gives me a terrible headache, brain fog, and more.  My neurosurgeon is a a fantastic world-renowned specialist that is one of the only doctors knowledgeable and experienced enough to do the special imaging and surgery that I have needed in the past and now may need again.  I am asking for help in funding the 2000 mile journey to Los Angeles and treatment costs so I can get better.   I am so much looking forward to taking care of my four sweet boys again.  Thank you for your help.
  • Anonymous 
    • $25 
    • 66 mos
  • Heather Moore 
    • $50 
    • 66 mos
  • Robbins Family 
    • $60 
    • 66 mos
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    • $20 
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  • Jason and Angie Hamm 
    • $50 
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Organizer

Jessica Kunz 
Organizer
Springfield, IL
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