Help 8yo Jackson #painfreejack

My name is Kim Hines. My 8yo son Jack looks like a typical kid. Hes funny, quick to crack a joke or play a prank. He's one of those kids that just make you smile. what you dont see is that his body has been going haywire. On valentines day 2018 we found out he has cerebral palsy and a tethered spinal cord. Most of his current problems started when he had surgery to release it a month later. The doctors believe that he had an underlying autonomic nervous system (ANS) dysfunction which was very mild. When the spinal cord was released it aggravated all the connecting nerves causing the ANS to go haywire. The ANS controls the bodily functions you dont have to think about. Blood pressure, heart beat, sweat, pupil focus, ect. Jack has a variety of symptoms that effect his daily life. Chronic chest and tummy pain, tacchardia, blood pressure instability. He gets "weak and shaky" and is so dizzy some days he can not walk. He has gastroparesis (slow emptying of the stomach) and a huge colon due to chronic constipation. His whole digestion system is slow and he has a cecostomy tube so he can go to the bathroom regularly. His bladder is huge and doesnt work properly. He doesnt sweat and his body temperature regulation often doesnt function as it should. Mostly he is incredibly vold and wears a sweatshirt almost constantly and often his winter cap. He is pale and his skin is mottled most of the time. He has occasionally turned blue. He needs to have specialized tests and doctors that are only available for children his age at a handful of places in the country. His health insurance would cover it but the facility does not accept out of state medicaid. Other similar programs are the same plus are not accepting new patients. The Dysautonomia Center of Excellence had a space opened up for him on Nov 11th 2019. Im hoping to raise as much as i can to help fund these tests and hopefully provide some relief for my little boy. There is no cure, but the tests and doctor visits will determine what meds and therapies can help to stabilize his little body. Any help you can give will be so gratefully appreciated and funds will only be used for his travel to Houston and to help pay for his medical bills down there.