Jacklyn's SDR Fund

Our daughter, Jacklyn was born three and a half months premature, weighing only a pound and a half. She spent what would have been the remainder of the pregnancy in the NICU. 

After missing many milestones, an MRI confirmed a diagnosis of Cerebral Palsy, an affliction that impacts her lower extremities. As a result of the spasticity (a constant and debilitating tightness of the muscles) associated with CP, Jacklyn's mobility has been seriously impaired throughout her life resulting in pain, physical exhaustion, and at times, emotional distress.

We are very fortunate to have learned about a procedure called Selective Dorsal Rhizotomy (SDR) and we are pleased to say that Jacklyn has been approved for this surgery. It will take place on October 5th, in St. Louis Missouri, and performed by Dr. T.S. Park, who is considered to be the best in his field. This spinal surgery consists of cutting into the vertebrae and severing the specific nerves responsible for her spasticity. A second surgery will be required also in St. Louis, several months later to lengthen her heel tendons to allow for greater range of motion.

Both procedures should prove to be immensely beneficial for Jacklyn, but Dr. Park has emphasized that in order to achieve the optimal outcome, an intensive and demanding program of physical therapy must be in place for months to follow. Unfortunately, insurance will only cover limited sessions, not the long term therapy that Jacklyn will require for her recovery to be at its fullest potential. Hence, our Go Fund Me page to help with necessary PT sessions and travel expenses. 

Please consider the magnitude of Jacklyn's difficult journey. Any donations will be graciously accepted and please be assured that every penny will be spent on Jacklyn's healthcare. Please share this page to help raise awareness of this life changing procedure.

Thank you!

Lisa Thomas and Mike Thomas
  • Anonymous 
    • $100 
    • 30 mos
  • Anonymous 
    • $400 
    • 35 mos
  • Mia O'Connell 
    • $110 
    • 35 mos
  • Cristin Gisler 
    • $150 
    • 35 mos
  • KELLEY GHEKIERE 
    • $100 
    • 35 mos
See all

Organizer

Lisa Billings Thomas 
Organizer
Ipswich, MA
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