Daughters OHS costs and costly medications

My daughter was born with Tetralogy of Fallot, heart defect, also with a autoimmune disorder.  She has had many surgeries over the past few years. My husband's company went bankrupt last year and we had to get new insurance, after 12yrs of the other. It's been hard financially.  Callie has had 4 surgeries in the past 3yrs, plus multiple hospital visits and pain/nerve blocks. She has had open heart surgery twice, spinal stimulator placed, stents placed. Plus she had a seizure in between there. She also sees a pain management doctor every couple weeks. Callie has been in pain for almost 2yrs now. Her pain is a 8/ out of 10, all day, everyday. In that time we have found out we need a new furnace and roof. We are drowning and I worry about losing our home. So if you can help, it would be appreciated.  If no . If you could please share. Thank you.