Mending RYLEIGH'S Heart!
Donation protected
Ryleigh Kathryn Loges was born October 13, 2014. On October 15, 2014 Ryleigh was able to go home for a few short hours. Ryleigh started showing signs of distress, and she turned grey. The ambulace was called and they rushed Ryleigh to Childrens Hospital.
It was discovered that Ryleigh had a congenital heart disorder which required open heart surgery at just eight days old.
Ryleigh was later dignosed with a genetic disorder known as 22Q.11 deletion syndrome which caused the heart defect. There are a gamut of medical issues that can stem from this disorder. It is unknown how many other medical problems Ryleigh will have in the future.
It is known that Ryleigh will more than likely have delayed learning. It is also known that Ryleigh has an extremely weak immune system. Ryleigh cannot attend daycare for at least 6 months to a year, but probably closer to a year.
In order to provide for Ryleigh, Ryleigh's dad had to leave his full time job to take care of her at home. This has left the family in a financal hardship.
Just yesterday, December 16,2014 Ryleigh had a scheduled appointment with her Cardiologist to ensure her heart was healing correctly. Her echocardiogram revealed that Ryleigh has grown scar tissue around the repair on her aortic arch which resticts the blood flow. To correct this, Ryleigh is scheduled for an operation on Monday December 22, 2014 where they will use a balloon to widen the restricted area.
Ryleigh and her family are greatful for all of the continued prayers and support. Your help will ease the finacial burden of Ryleigh's continued heath care and the current loss of income. We understand that not everyone can contribute a monatary value but any and all prayers and support are welcomed.
It was discovered that Ryleigh had a congenital heart disorder which required open heart surgery at just eight days old.
Ryleigh was later dignosed with a genetic disorder known as 22Q.11 deletion syndrome which caused the heart defect. There are a gamut of medical issues that can stem from this disorder. It is unknown how many other medical problems Ryleigh will have in the future.
It is known that Ryleigh will more than likely have delayed learning. It is also known that Ryleigh has an extremely weak immune system. Ryleigh cannot attend daycare for at least 6 months to a year, but probably closer to a year.
In order to provide for Ryleigh, Ryleigh's dad had to leave his full time job to take care of her at home. This has left the family in a financal hardship.
Just yesterday, December 16,2014 Ryleigh had a scheduled appointment with her Cardiologist to ensure her heart was healing correctly. Her echocardiogram revealed that Ryleigh has grown scar tissue around the repair on her aortic arch which resticts the blood flow. To correct this, Ryleigh is scheduled for an operation on Monday December 22, 2014 where they will use a balloon to widen the restricted area.
Ryleigh and her family are greatful for all of the continued prayers and support. Your help will ease the finacial burden of Ryleigh's continued heath care and the current loss of income. We understand that not everyone can contribute a monatary value but any and all prayers and support are welcomed.
Organizer
Leighanne Collister Loges
Organizer
Ashland, NE
