Isabelle Ceron family jmml cancer fund
Donation protected
Meet Isabelle Ceron, about a month after her first birthday( feb21,2019)Isabelle started getting fevers almost constantly, rashes would come and go, she would just want to lay on her mother’s chest and infections were a normal that had no explanation. On April 8 2019 Isabelle was extremely lethargic and we feared the worst and rushed to an emergency room where Isabelle was admitted and a sonogram of her concluded she had fluid build up around her heart; a tap was scheduled to remove the fluid build up but due to constant Advil dosing by the hospital the day of the surgery the fluid had disappeared. We were sent home without any explanation. For over a year our life changed from caring for Isabelle to countless doctors visits with multiple specialists who told us that there was no need for genetic testing but couldn’t give a diagnosis.
On March 27, 2020 everything changed after a grueling year of us fighting with specialists for a diagnosis. Isabelle unfortunately was diagnosed with juvenile myelomonocytic leukemia (jmml), which is a rare and serious form of childhood leukemia. Jmml occurs in children usually under two years of age, jmml occurs when too many blood stem cells become white blood cells(monocytes and myelocytes). Jmml is thought to be a 1 in 1,000,000 genetic mutation and is more common in males under two years of age. If left untreated there’s a slim chance(5%) any child makes it to 5 years of age. Once treatment is complete and she goes into remission there is a 50% chance of jmml reappearing and having to undergo a second treatment plan.
This has been a long journey for Isabelle and her parents. May 2, 2020 Isabelle had a double broviac lumen line surgically placed in her chest so she could receive her first round of conditioning chemotherapy, all which were outpatient. June 9, 2020 Isabelle was admitted to Wolfsons children hospital in Jacksonville, FL. The only curative treatment for jmml is allogeneic hematopoietic stem cell transplantation(HSCT). leukemia recurrence is the main cause of treatment failure because jmml progresses so rapidly.
We’ve watched our sweet, sassy, caring daughter go from bad to worse. Due to the covid 19 pandemic Isabelle is limited to one visitor in the room during her >90 days treatment plan which makes matters worse on top of that COVID has caused her dad to become unemployed with no means of income we are at one hardest times of our life’s. We don’t have reliable transportation and our financial position makes it impossible. On top of everything we are 3 hours from home and have to stay in the Jacksonville area for 2 months after isabelle is cured so they can monitor any serious complications. We hate to ask for charity but this is our last resort.
This fundraiser has been established to ease the financial, transportation, food, medical, and any other burdens that we are not prepared for. Any unused funds will be donated to children cancer funds to help children and families in need.
No donation is too small, if you are unable to donate PLEASE continue to share her story any way you can.Anything helps we just want our daughter to be able to live a normal life after all that she’s gone though. We are beyond thankful to any help we receive
On March 27, 2020 everything changed after a grueling year of us fighting with specialists for a diagnosis. Isabelle unfortunately was diagnosed with juvenile myelomonocytic leukemia (jmml), which is a rare and serious form of childhood leukemia. Jmml occurs in children usually under two years of age, jmml occurs when too many blood stem cells become white blood cells(monocytes and myelocytes). Jmml is thought to be a 1 in 1,000,000 genetic mutation and is more common in males under two years of age. If left untreated there’s a slim chance(5%) any child makes it to 5 years of age. Once treatment is complete and she goes into remission there is a 50% chance of jmml reappearing and having to undergo a second treatment plan.
This has been a long journey for Isabelle and her parents. May 2, 2020 Isabelle had a double broviac lumen line surgically placed in her chest so she could receive her first round of conditioning chemotherapy, all which were outpatient. June 9, 2020 Isabelle was admitted to Wolfsons children hospital in Jacksonville, FL. The only curative treatment for jmml is allogeneic hematopoietic stem cell transplantation(HSCT). leukemia recurrence is the main cause of treatment failure because jmml progresses so rapidly.
We’ve watched our sweet, sassy, caring daughter go from bad to worse. Due to the covid 19 pandemic Isabelle is limited to one visitor in the room during her >90 days treatment plan which makes matters worse on top of that COVID has caused her dad to become unemployed with no means of income we are at one hardest times of our life’s. We don’t have reliable transportation and our financial position makes it impossible. On top of everything we are 3 hours from home and have to stay in the Jacksonville area for 2 months after isabelle is cured so they can monitor any serious complications. We hate to ask for charity but this is our last resort.
This fundraiser has been established to ease the financial, transportation, food, medical, and any other burdens that we are not prepared for. Any unused funds will be donated to children cancer funds to help children and families in need.
No donation is too small, if you are unable to donate PLEASE continue to share her story any way you can.Anything helps we just want our daughter to be able to live a normal life after all that she’s gone though. We are beyond thankful to any help we receive
Organizer
Gustavo Ceron
Organizer
Jacksonville, FL
