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Isaac has Alopecia Areata at age7

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Aloha, our son Isaac DeRego was diagnosed in 2014 at age 7 with Alopecia, an auto immune disease. Isaac always has been a healthy and very active athlete.  Isaac loves playing baseball, soccer, swimming, kempo, tennis, flag football, hunting and he volunteers at our local humane society, too.  He is all star baseball player (his dad is the coach of his baseball team and I am the coach of his soccer team). He will be entering 4th grade and just turned 9 yesterday. In school he is involved with volunteering for numerous groups and events, including  student council.  Isaac has a big heart and always gives more than he receives, he is very generous with his time. Isaac would rather give his last bite of cupcake away than keep it for himself.  Isaac and our family are very involved in our Catholic Church, Isaac actively is father's servant; he last year received first communion. Since Isaac has been diagnosed with Alopecia, life has been different for our family.  He went from being the most confident student, son, grandson, nephew, friend, athlete and mentor...to a complete different insecure Isaac we have never seen. This disease has taken a toll on such a great young man who is awesome in school and sports, due to extra care, treatments, and doctor attention with his hair loss. He won't take his baseball hat off ever.  Living in Hawaii, our research and expertise are very limited, as this is not common in children and we do not have specialists on our island who can help us, we have tried.  The specialists in Oahu could not help either. We are told, there is no cure or options to treat Isaac.  We are going to be seen by the head of dermatology at USC and he has been very kind to us from the minute we contacted him.  He has expertise in this probelm and will try to help.  Travel expenses and medicine will be costly for us. Our hope and faith is that the doctors at USC can help Isaac. I believe we will find more information to cure Isaacs auto immune disease, and get help with the growth of his body hair (head and brows).  I have posted photos so you can see what he looks like now and what he looked like before. The cost to travel is a little discouraging. This is the beginning, to find the treatments Isaac needs to fight this disease, and get his confidence back. We will probably have to go to see the doctor many times and he is far away but children from all over the world go to this clinic at USC when they have problems that cannot be solved locally. I have to commute to get this help and keep him happy and get our old Isaac back who is confident and not embarrassed. We want him to be healthy. Thank you for helping us. This is a life long disease with no cure today. He will need treatment and medicine for many years, we have been told. Please accept our appreciation in advance.

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Donations 

  • Kurt Hassfurther
    • $500 
    • 8 yrs
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Organizer

Elena DeRego
Organizer
Waimea/Kamuela CDP, HI

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