In memory of Chloe Hayes

Chloe was a 19year old sassy lady that was one of the minority of children in ireland to be diagnosed with Juvenile Huntington's disease JHD.  Juvenile Huntington disease (HD) is a less common, early-onset form of Huntington disease that begins in childhood or adolescence. It is a progressive disorder that causes the breakdown of brain cells in certain areas of the brain. This results in uncontrolled movements, loss of intellectual abilities, and emotional disturbances. Juvenile HD is defined by the onset of symptoms before age 20 years and accounts for 5-10% of all HD cases. It is inherited in an autosomal dominant pattern and is caused by a type of mutation called a trinucleotide repeat, in the HTT gene. Most often, children with juvenile HD inherit the mutation repeat from their fathers, although on occasion they inherit it from their mothers.Juvenile Huntington disease has a rapid disease progression once symptoms present. There currently is no cure. Treatment is supportive and focused on increasing quality of life.Most people with juvenile HD do not survive more than 10 to 15 years after symptoms begin.Unfortunately Chloe lost her battle with this awful disease 15/05/2020. I've been given permission from her family to set this go fund me up to help the family give this Beautiful young lady the send off she deserves. Unfortunately due to Covid19 only 10 people were allowed to attend Chloe's funeral so this go fund me page is to help with expenses and when this Pandemic is over for a memorial in honour of Chloe and all shes achieved in her short life..please support if you can everything raised goes straight to Geraldine Chloe's mother ..