Hope for Kaelynn

On 07/12/17, Our lives changed forever and we were given news that no mother should ever have to hear. My fun, sweet, loving 5 year old daughter KAELYNN was diagnosed with DIPG( DIFUSED INTRINSIC PITONE GLIOMA) and the condition is terminal. Diffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat brain tumors found at the base of the brain. They are glial tumors, meaning they arise from the brain's glial tissue—tissue made up of cells that help support and protect the brain's neurons. Our only hope was to participate in a clinical study and pray for any additional treatment options that could keep Kaelynn with us as long as possible. We have been in and out of the hospital since Kaelynn was diagnosed and have prayed the radiation treatment will give us some hope. At first, Kaelynn responded well to treatment but her condition has now progressed and the tumor on her brain stem has grown larger. Kaelynn’s health is continuing to deteriorate, and the doctors have now told us that there is nothing else we can do. On 12/08/17, Kaelynn was put on hospice care. Kaelynn is surrounded by all her loving friends and family and we are continuing to pray for a miracle. Any and every bit of support is very much appreciated and prayers of complete healing are Priceless, God Bless. ABOUT KAELYNN: Kaelynn blessed us on 03/21/12 and we have cherished every moment with her. Kaelynn is a fun loving, energic 5 year old who has the biggest heart and is the best big sister! Kaelynn and her little sister, Janiyah, love playing dress up and watching Frozen! In July 2017, our healthy, active, intelligent 5-year-old daughter came down with what we thought to be a headache. She soon started becoming dizzy, falling down and losing her vision. After weeks of doctor visits, we finally insisted on having a MRI scan. The word, CANCER, was not even a consideration in our minds, let alone terminal cancer. If you are a parent, you know the devastation of hearing that anything is harming your child. It breaks my heart everyday to watch my child suffer and there is nothing I can do about it. We have and will continue to tell her how much we love her everyday and that we are going to fight this until the end. Kaelynn fully understands her condition but she continues to smile and fight through this. Her courage is inspiring and she has proven stronger than all of us. We love our baby girl and we will never give up hope. She is our heart and soul.  ** #TeamKaelynn