On Friday they got a devastating diagnosis for our sweet Hailey. Hailey had an eeg Friday and we got the diagnosis of Infantile Spasms/West syndrome. It was a 1/20,000 chance of this happening progressing from her epilepsy. After careful consultation with key doctors they have decided to undergo two weeks of aggressive treatment which has a 50/50 chance of being successful. This treatment alone for just the medication is $100,000. If this doesnt work Hailey and the family will be heading out to LA to see one of two specialists to work on a new plan to try and curb the spasms.
Hailey has been in and out of hospitals in her very short life and the burden on the family is just mounting up. All contributions are being directly transferred into Katie's bank account and will be used towards medical bills and expenses in getting Hailey the treatment she needs.
Please can you consider contributing even $5 to try and ease their financial burden so that their energy can be on healing and getting through this as a family.
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