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Help Yasmin om te ademen - Een kans op leven.

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Yasmin page 

Hallo mensen! Dit mooie kind heet Yasmin. Ze is 7 jaar oud en kreeg op 2,5-jarige leeftijd de diagnose taaislijmziekte. Taaislijmziekte, ook wel Cystic fibrosis (CF) genoemd, is een genetische ziekte die vooral de longen aantast, maar ook de alvleesklier, lever, nieren en darmen. De problemen die daaruit voortkomen zijn onder meer ademhalingsmoeilijkheden en het ophoesten van slijm als gevolg van frequente longinfecties en ophoping van bacteriën. Deze ophoping kan tot de dood kunnen leiden. De ziekte is genetisch overdraagbaar en haar oom stierf aan taaislijmziekte op 13-jarige leeftijd. Het was destijds erg moeilijk voor de familie en nu gaan we weer door deze strijd heen. Yasmin is een heel sterk kind en wil heel graag leven, maar ze heeft al talloze infecties gehad die bijna tot haar dood leidden. Ze is helaas gekoloniseerd met hele sterke bacteriën die ook de oorzaak zijn van de dood van veel mensen. Het is een dagelijkse strijd en ze wil gewoon op de best mogelijke manier leven, dus heb ik besloten hier een crowdfunding te organiseren. Vanwege de dagelijkse en nachtelijke hoestbuien wil ik haar een passende behandeling kunnen geven, zodat ze de kans krijgt om te groeien en een leven te leiden dat dichter bij normaal is komt. Mijn ziektekostenverzekering dekt niet veel dingen en dit maakt het onmogelijk om haar toegang te geven tot de beste behandelingen. Vanwege het continue toezicht en de lange ziekenhuisopnames die ze ieder jaar heeft, heb ik niet veel kans op werk. Ik wil voor haar een vibrerend vest aanschaffen dat zal helpen met long- en slijmafvoer. Ook de aanschaf van het Volara-systeem, dat haar ademhaling stimuleert en tevens aanvullende zuurstof levert, is een grote wens. Omdat ik me de aanschaf van deze machines niet kunnen veroorloven, hoop ik op een donatie van u. Geef mijn dochter een kans om te leven en ademen. // Ik dank jullie toch allemaal! God zegene u.

 

Ik wens u en uw naasten een voorspoedig en vooral gezond 2021,

hier is de link op de apparatuurpagina met de waarden. 

https://henrotech.be/nl/product/volara-systeem?fbclid=IwAR0cYC3sStQMnnxCTRw8GH5StWwee2hDp6YRNTgB6LLHwsgpWNjXNNfH3hc

https://www.hillrom.com/en/products/the-monarch-airway-clearance-system/

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Hello people! This beautiful child is called Yasmin. She is 7 years old and was diagnosed with cystic fibrosis at the age of 2.5 years. Cystic fibrosis, also known as cystic fibrosis (CF), is a genetic disease that mainly affects the lungs, but also the pancreas, liver, kidneys and intestines. The problems that result from this include difficulty breathing and coughing up mucus due to frequent lung infections and bacteria build-up. This build-up can lead to death. The disease is genetically transmissible and her uncle died of cystic fibrosis at the age of 13. It was very difficult for the family at the time and now we are going through this struggle again. Yasmin is a very strong child and really wants to live, but she has already had numerous infections that almost led to her death. Unfortunately, it has been colonized with very strong bacteria that are also the cause of the death of many people. It's a daily struggle and she just wants to live in the best possible way, so I decided to host a crowdfunding here. Because of the daily and nocturnal coughing fits, I want to be able to give her appropriate treatment so that she has the opportunity to grow and live a life closer to normal. My health insurance doesn't cover many things and this makes it impossible to give her access to the best treatments. Because of the continuous supervision and the long hospital admissions she has every year, I don't have much chance of a job. I want to get her a vibrating vest that will help with lung and mucus drainage. The purchase of the Volara system, which stimulates her breathing and also supplies additional oxygen, is a great wish. Since I cannot afford to buy these machines, I am hoping for a donation from you. Give my daughter a chance to live and breathe. // Thank you all! God bless you.

I wish you and your loved ones a prosperous and above all healthy 2021,

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Olá pessoas! Esta linda criança se chama Yasmin. Ela tem 7 anos e foi diagnosticada com fibrose cística aos 2,5 anos. A fibrose cística, também conhecida como fibrose cística (FC), é uma doença genética que afeta principalmente os pulmões, mas também o pâncreas, o fígado, os rins e os intestinos. Os problemas que resultam disso incluem dificuldade em respirar e tosse com muco devido a infecções pulmonares frequentes e acúmulo de bactérias. Esse acúmulo pode levar à morte. A doença é geneticamente transmissível e seu tio morreu de fibrose cística aos 13 anos. Foi muito difícil para a família na época e agora estamos passando por essa luta novamente. Yasmin é uma criança muito forte e com muita vontade de viver, mas já teve várias infecções que quase a levaram à morte. Infelizmente, ele foi colonizado por bactérias muito fortes que também são a causa da morte de muitas pessoas. É uma luta diária e ela só quer viver da melhor maneira possível, então decidi fazer um crowdfunding aqui. Por causa das crises de tosse diárias e noturnas, quero poder dar-lhe o tratamento adequado para que ela tenha a oportunidade de crescer e viver uma vida mais próxima do normal. Meu seguro saúde não cobre muitas coisas e isso impossibilita que ela tenha acesso aos melhores tratamentos. Por causa da vigilância contínua e das longas internações que ela recebe todos os anos, não tenho muita chance de um emprego. Quero comprar para ela um colete vibratório que ajude na drenagem pulmonar e de muco. A compra do sistema Volara, que estimula a respiração e também fornece oxigênio adicional, é um grande desejo. Como não posso comprar essas máquinas, espero receber uma doação sua. Dê a minha filha uma chance de viver e respirar. // Obrigado a todos! Deus te abençoê.
 
 Desejo a você e a seus entes queridos um próspero e acima de tudo saudável 2021,



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Organizer

Tai Yasmin
Organizer
Beek, NL

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