This is my Victoria, most of you know her and undoubtedly love her. But for those who don’t know her, let me tell you.. she’s full of life, so strong, opinionated, she’s a great forgiver, a bit of a nerd (and proud of it), she’s a jokester, a leader, She has a huge heart for everyone but especially for those who are ever in need. She’s 13, She loves Photography, Comic Books, People (especially the Elderly), Dogs, Food, Dancing, Music and most importantly, Jehovah God. Right before she became sick, she had set her career path to become a mechanical engineer and enrolled at a dual-enrollment high school that allows her the opportunity to graduate high school with her associates degree. She was elated! On June 25th 2018 she called me at work to tell me that she had woken up to her arms and legs shaking. That day we went to the hospital. After tons of blood tests and an MRI of her brain, she was sent home with no answers. We were told that she wasn’t expressing any signs of stress but that this must be stressed induced because there was no virus present and that maybe she has just suppressed a memory and so I should get her to a psychologist. That Friday I took her to a naturopath clinic for more labs. They said it would take two weeks to get results so we went home and waited for the results while watching her become severely fatigued to the point that she needed help eating, walking and bathing. After 1 week and her continued decline, we ended up at another hospital. After a spinal tap, they said that her white blood cell count was normal so there must not be a virus and chalked it up to stress (never even sent the blood to the labs to be tested). That neurologist said get therapy and come back in 6 months. By this point she had lost her ability to speak, there was no explanation for that either.
So, naturopath clinic ended up finding EBV. We took those labs to a Chinese medicine doctor who diagnosed her with Chronic Meningitis. She was treated locally for that and it is no longer present in her body at yet she is still sick and shaking.
Since the beginning her pediatrician has been sending “emergency” requests to multiple neurologists for an EEG to no avail.. We have seen several naturopaths who have each given us a different diagnosis and have treated her with herbs and frequencies. Her energy levels and appetite have at times improved however despite that her nervous system has continued to decline. She suffers from constant headaches, sensitivity to sounds, insomnia, rashes, trouble walking and focusing, nausea, etc.. As of two weeks ago we’ve been told by 3 different doctors that they believe she is experiencing seizures and is now believed to have an advanced stage of Lyme Disease that has spread to her brain and is causing damage to her nervous system and needs immediate, aggressive treatment.
We are currently in Reno, NV., (on donated funds and 3 different credit cards) to see a special clinic known for helping people with Lyme disease and other very severe illnesses. We were referred here by a very credible source and after meeting with the doctor and his staff here as well as some of the patients, I feel this is the best opportunity for her to get properly diagnosed and treated. Hence, my call out for help. This clinic has a great reputation of finding and treating otherwise “undiscoverable” conditions however, they use natural medicine to do so. What that means, is that our health insurance won’t cover any labs or treatments offered here.
I know that we all work hard for what we need and we all have responsibilities to attend to so it is hard for me to ask for help but I’ve learned in the past few months that I have to ask for help because we simply cannot get her the tests and treatments that she needs because Unfortunately the tests and treatments here run anywhere from 3k to 5k per week. The treatment plan is designed for anywhere from 4-8 weeks. This includes very aggressive detox, killing of the virus, rebuilding of her immune system, treatments for her brain to begin to heal, amongst many forms of therapies and supplements for all of her individual organs to heal, etc.
She really misses her friends, being in school, sharing in the preaching work, flat ironing her hair and singing & dancing like a normal 13 yr old girl should. As a mom it hurts me to not be able to get her back to that so i’ve been humbled to the point of having to ask for help for her sake. We have received help from so many of our friends in the past few months for which we are extremely grateful and that kindness will never ever be forgotten. In fact, that kindness got us in a position to be here seeking diagnosis. Unfortunately this new path for treatment will be out of our reach without again, asking for help. That being said, If you are in a position to help, we will be eternally grateful and can only promise to pay it forward when the opportunity arises.
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