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Help Trudy raise money for life changing treatment

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I want to say to a massive thank you to the donations from my party which raised £585 towards my aim for treatment on my gofundme page which is phenomenal thankyou from the bottom of my heart ❣

For anyone wanting to donate using Paypal, our PayPal address is:

[email redacted]

Thank you for your support! We love you all!

My name is Trudy, I am a 49 year mum of 2 beautiful boys of 18 and 27 years old and a very supportive husband and family. 

I was an active cyclist, always walking places and love to visit many places in the UK, but I don’t seem to be able to manage these anymore.  I have worked and still work in educational settings for over 30 years and love it!. 

I was diagnosed with Multiple Sclerosis back in February 2017 after numerous MRI’s and a lumbar puncture.  Over the last year my health has deteriorated with walking being very slow and unsteady, fatigue and right sided weakness of my leg and arm, I struggle everyday!
Fatigue is destroying my health/confidence and life, just surviving each day best I can. 

I have been recently diagnosed with Primary Progressive Multiple Sclerosis. Primary progressive MS affects about 10-15% of people diagnosed with MS and has this name because from the first (primary) symptoms it is progressive. Symptoms gradually get worse over time, rather than appearing as sudden attacks (relapses). In primary progressive MS, early symptoms are often subtle problems with walking, which develop – often slowly – over time. 

Whatever symptoms someone experiences, the way they progress can vary – from person to person and over time. So, although in the long-term symptoms might get gradually worse, there can be long periods of time when they seem to be staying level, with no noticeable changes. This type of MS is usually diagnosed in people in their forties or fifties – older than the average age for relapsing remitting MS – but it can be diagnosed earlier or later than this. There are treatments available in the UK to help manage this type of MS but I unfortunatley don't meet the criteria.

This is why I am pursuing the treatment of HSCT.

HSCT Hematopoietic Stem Cell Transplantation is a "reboot" of the immune system, essentially "restoring to factory settings" enabling the body to forget MS.

It is a ground breaking treatment that uses the patient's own harvested stem cells following high dose, intensive chemotherapy. This may seem drastic, after all chemotherapy is a powerful drug with horrendous side effects and I don't have cancer! But HSCT treatment has been proven in clinical trials to STOP DISEASE ACTIVITY in over 80% of patients with active, Relapsing and Remitting MS. Many patients also experience some improvement in their symptoms.

Unfortunately HSCT is not yet widely available in the UK. I have researched the treatment and been offered the opportunity to travel to the A.A. Maximov hospital in Moscow to undergo treatment. However, I need to raise £50,000 to get there.

So thank you from the bottom of my heart if you could donate a penny or more to spend on life changing treatment

I am truly grateful for you all…… :)



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Donations 

  • Michele Wood-Tonks
    • £40 
    • 5 yrs
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Fundraising team (2)

Arron Judson
Organizer
Trudy Judson
Team member

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