Help Step Father see Nephew
Donation protected
Deep breath....
Our worst fears have been confirmed and River has a very rare type of tumour. Most of it was successfully removed. I'm not ready to use the C word on here yet and I don't want to name the type before we have it written down in black and white. His surgeon is pretty sure he knows what it is and pathology during surgery would also suggest he is right. It is also highly probable it is from the genetic mutation in the family I had mentioned before. We won't know that for sure until River is tested for the gene mutation. Dallas and I will then have to be tested too, if he does have this predisposed syndrome.
We could/may go home around Tuesday next week before a treatment plan has been put into place but that's all dependant on River's recovery.
He is doing extremely well! After a scare post-surgery (his heart rate dropped) they took him to the PICU (intensive care) and honestly that was the worst part for me. However, ten minutes later his surgeon came in and said he'd walked into River's room and our little treasure had popped his eyes open and looked right at him! Kicking his arms and legs (his surgeon was worried about motor damage so that was great) and his words were "I am very, very surprised" because his little face that was drooping on the left side had noticeably improved!
He was taken off all breathing equipment but we are still in the PICU overnight purely for precaution. His vitals are perfect he is recovering from the surgery itself as well as he could be
As a mum, even though I've only had a year's experience, you just know when something is wrong with your baby. Those who know me well I'm sure would agree I am also a very rational, realistic human and after all of the information I had received from the incredible Debbie (Dallas' second cousin) I was able to research and educate myself so I was fairly certain with what we were facing. Dr. Tomita asked if I was a nurse because of my knowledge ( mum's do better research than the FBI!). But still, nothing prepares you for those words confirming your fears.
River is an exceptionally smart, strong, special child. I have every faith in him being able to kick this disease in the butt! We already have a support network of amazing doctors, nurses, friends and family rooting for River (#RootingForRiver some of my friends have been using! I love it!) and I know we have a particularly rough journey in front of us but as I've said to friends I have 2 choices. Be strong or don't be. And I'm going to fight for my sweet, sweet boy.
As for updates, we will be spending this week concentrating on River's recovery from his surgery but if I feel like anything needs to be shared I will share it!
Dal & I just want to thank everyone who has sent love and light, prayers and healing energy to our beautiful boy. We are overwhelmed. And to his amazing nurses, doctors and surgeons. A special thank you to Dr. Spomenka Jercinovic (his primary doc/paediatrician) who I absolutely believe without, we would still be scratching our heads. She did not look at him for more than 20 seconds and she knew acting fast was the only option.
River, you've got this. You've got us. We love you all the stars in the sky.
My step father is broke this holiday season and desparately needs funds to buy a plane ticket to be with his family during this crisis. Please, give for them and help them. =( We aren't sure what the outcome will be but I want my mother's husband to be able to spend some time with his grandson, who is two years old and daughter.
Our worst fears have been confirmed and River has a very rare type of tumour. Most of it was successfully removed. I'm not ready to use the C word on here yet and I don't want to name the type before we have it written down in black and white. His surgeon is pretty sure he knows what it is and pathology during surgery would also suggest he is right. It is also highly probable it is from the genetic mutation in the family I had mentioned before. We won't know that for sure until River is tested for the gene mutation. Dallas and I will then have to be tested too, if he does have this predisposed syndrome.
We could/may go home around Tuesday next week before a treatment plan has been put into place but that's all dependant on River's recovery.
He is doing extremely well! After a scare post-surgery (his heart rate dropped) they took him to the PICU (intensive care) and honestly that was the worst part for me. However, ten minutes later his surgeon came in and said he'd walked into River's room and our little treasure had popped his eyes open and looked right at him! Kicking his arms and legs (his surgeon was worried about motor damage so that was great) and his words were "I am very, very surprised" because his little face that was drooping on the left side had noticeably improved!
He was taken off all breathing equipment but we are still in the PICU overnight purely for precaution. His vitals are perfect he is recovering from the surgery itself as well as he could be
As a mum, even though I've only had a year's experience, you just know when something is wrong with your baby. Those who know me well I'm sure would agree I am also a very rational, realistic human and after all of the information I had received from the incredible Debbie (Dallas' second cousin) I was able to research and educate myself so I was fairly certain with what we were facing. Dr. Tomita asked if I was a nurse because of my knowledge ( mum's do better research than the FBI!). But still, nothing prepares you for those words confirming your fears.
River is an exceptionally smart, strong, special child. I have every faith in him being able to kick this disease in the butt! We already have a support network of amazing doctors, nurses, friends and family rooting for River (#RootingForRiver some of my friends have been using! I love it!) and I know we have a particularly rough journey in front of us but as I've said to friends I have 2 choices. Be strong or don't be. And I'm going to fight for my sweet, sweet boy.
As for updates, we will be spending this week concentrating on River's recovery from his surgery but if I feel like anything needs to be shared I will share it!
Dal & I just want to thank everyone who has sent love and light, prayers and healing energy to our beautiful boy. We are overwhelmed. And to his amazing nurses, doctors and surgeons. A special thank you to Dr. Spomenka Jercinovic (his primary doc/paediatrician) who I absolutely believe without, we would still be scratching our heads. She did not look at him for more than 20 seconds and she knew acting fast was the only option.
River, you've got this. You've got us. We love you all the stars in the sky.
My step father is broke this holiday season and desparately needs funds to buy a plane ticket to be with his family during this crisis. Please, give for them and help them. =( We aren't sure what the outcome will be but I want my mother's husband to be able to spend some time with his grandson, who is two years old and daughter.
Organizer
Emily Randolph Scherer
Organizer
Augusta, GA
