Help Rachel Raise Funds for ALS Treatments

 

 

 

We’ve created this GoFundMe for Rachel DeBoer.

 

She’s a friend like family to many, a soul sister, an incredible artist, a teacher, an avantgarde, a clown, and one of the strongest people you will ever meet. At this time, she is fighting for her life as she battles ALS. As they say, “it takes a village,” and the purpose of this crowd funding campaign is to pull together and help our soul sister find more comfort, stop the progression of this disease, and receive the treatments she needs to heal.

 

Please consider a donation to her treatments, and please share this GoFundMe with your communities at large; via email and social media channels. For more information, feel free to contact the organizer through this GoFundMe for Rachel's contact info (not able to display on GoFundMe for privacy reasons).

 

 

 

 

Note From Rachel:

 

Hi, I'm Rachel DeBoer.

 

In Winter of 2019, I noticed a stiffness in the index finger of my left hand. I didn't give it much thought and went on about my life.In February of 2020, I got very sick with the flu as well as with mononucleosis, and in March of 2020 I noticed a twitching all throughout my body, especially in my arms. It took several more months in August of 2020 to officially be diagnosed with ALS or Lou Gehrig's Disease. Obviously, my prognosis is not the best.

 

The median survival rate is 2-5 years from onset of disease. This is seen as a terminal illness. It is a neurodegenerative disease that slowly robs the patient of their ability to move, speak, walk, and eventually breathe.

 

I am fighting for my life with conventional pharmaceutical recommendations as well as with experimental holistic treatments that are on the cutting edge of science.

 

I am going to prove them all wrong and heal myself with cutting edge holistic treatments that are available for people with ALS.

 

 

 

 

At the bottom of this GoFundMe, you’ll see several links explaining what exosomes are and the website of the clinic offering them. The $50,000 will be used for the exosome injections, peptide injections, nutritional IVs and ozone therapy, offered by the Bioreset clinic as well as hyperbaric oxygen therapy. None of these treatments are covered by insurance.

 

After being diagnosed with ALS, I went into a fear state and some days are super tough. I am doing all the conventional pharmaceutical drugs such as Riluzole and Radicava. I will have to get infusions into me every two weeks and probably for the rest of my life. They are administered via a port in my chest. I have started nutritional IVs, ozone treatment, hyperbaric oxygen therapy, as well as a new cutting edge holistic integrative wellness treatment called exosomes. Exosomes may hold the key to disease deprogression.

 

So, what are Exosomes?

 

Exosomes are stem cell excretions, and they aid the body in healing and communication between the cells. I've also been diagnosed with Lyme's disease and arthritis of the neck, which I suspect helped pave the way for ALS. There is a treatment of multiple exosome injections into the spinal fluid of the neck that is being offered at the BioReset Clinic here in Campbell, California, not that far from where I live, as well as peptides injections. Unfortunately, none of these treatments are covered by insurance, and each exosome spinal injection costs approximately $5,000.

 

However, speaking with medical professionals and others, ALS patients have seen some success with exosomes being injected directly into the areas of their body that are affected by the ALS. My aim is to raise $50,000 to give my body a fighting chance to halt the progression of ALS, or slow it down to such a minuscule amount that I will live many, many years to come.

 

My aim is to live many decades and I know I can do it. Please consider donating so I can continue bringing light, laughter, and joy through my art and the rest of the world.

 

I will heal this. I am going to heal this, but I can't do it alone.

 

 

Thank you,

 

Rachel DeBoer