Help Petrisor fight Corticobasal Syndrome
Donation protected
If you're reading this you probably know my cousin Petrisor "Pete" Button, and if you are like me he probably helped you at one time or another. Right now he is in need of help. In October 2018 Petrisor was hospitalized due to significant behavioral changes and paranoia. Over the last 5 months or so we have been going doctor to doctor to try and get a Diagnosis and potential treatment plan.
During this time Petrisor has had good days where he seems like the old Pete you know and bad days where every day tasks are difficult. He is currently living in a group home in North Phoenix (Feel free to message me with the info if you would like to visit) but spend several days a week at my home. On February 26th after more than 4 months of dealing with unknowns we finally received a diagnosis.
Corticalbasal Syndrome is a rare neurological and physiological terminal disease that attacks both the mind and body. There is no cure and no proven treatment, with a life expectancy after diagnosis of approximately 5 years. This syndrome is kind of a terrible combination of the worst parts of Parkinsons and Alzheimers, affecting all aspects of the body and mind. There is however some evidence that stem cell treatment (Note: These are adult stem cells from his stomach) can have a significant impact on similar diseases in some patients.
Although it is unproven, Petrisor's only chance at a prolonged high quality life is this treatment. We have decided to move forward knowing full well that it may not work but we feel like we have to give it a chance. I am reaching out for your help because the treatment is very expensive, and the care facility he lives in will be more expensive the more assistance he will need. (Social security disability is still pending at this point.)
The stem cell treatment from a trusted doctor in the Valley has a typical cost of $19,000, however because they want to see Petrisor benefit and use his hopeful success as a case study they offered us a discount. At $15,000 the discounted price is still a significant expense, and I am hoping that you his friends and family are willing to help offset some of that cost.
Every dollar raised that we receive will go toward either his monthly home care or offsetting the cost of the treatment.
Note: The treatment is scheduled for Wednesday March 20th 2019. Our hope is that immediately the Parkinsons symptoms such as shaking will be improved. Over time 6-9 months we hope to see an improvement in speech, movement, memory and clarity of mind. Any or all of these would help to create a better quality of life for him, but again there are no guarantees.
Anything you can give would be greatly appreciated, and we need your prayers too.
At this point the syndrome has caused Petrisor difficulty in speech, memory, walking, showering and dressing himself and will likely progress pretty quickly without a successful treatment. Because of this we ask for discretion as we know this is a necessity but he would prefer it not be shared on social media in mass. Please forward it directly to the people that you want to reach. Thank you so much.
During this time Petrisor has had good days where he seems like the old Pete you know and bad days where every day tasks are difficult. He is currently living in a group home in North Phoenix (Feel free to message me with the info if you would like to visit) but spend several days a week at my home. On February 26th after more than 4 months of dealing with unknowns we finally received a diagnosis.
Corticalbasal Syndrome is a rare neurological and physiological terminal disease that attacks both the mind and body. There is no cure and no proven treatment, with a life expectancy after diagnosis of approximately 5 years. This syndrome is kind of a terrible combination of the worst parts of Parkinsons and Alzheimers, affecting all aspects of the body and mind. There is however some evidence that stem cell treatment (Note: These are adult stem cells from his stomach) can have a significant impact on similar diseases in some patients.
Although it is unproven, Petrisor's only chance at a prolonged high quality life is this treatment. We have decided to move forward knowing full well that it may not work but we feel like we have to give it a chance. I am reaching out for your help because the treatment is very expensive, and the care facility he lives in will be more expensive the more assistance he will need. (Social security disability is still pending at this point.)
The stem cell treatment from a trusted doctor in the Valley has a typical cost of $19,000, however because they want to see Petrisor benefit and use his hopeful success as a case study they offered us a discount. At $15,000 the discounted price is still a significant expense, and I am hoping that you his friends and family are willing to help offset some of that cost.
Every dollar raised that we receive will go toward either his monthly home care or offsetting the cost of the treatment.
Note: The treatment is scheduled for Wednesday March 20th 2019. Our hope is that immediately the Parkinsons symptoms such as shaking will be improved. Over time 6-9 months we hope to see an improvement in speech, movement, memory and clarity of mind. Any or all of these would help to create a better quality of life for him, but again there are no guarantees.
Anything you can give would be greatly appreciated, and we need your prayers too.
At this point the syndrome has caused Petrisor difficulty in speech, memory, walking, showering and dressing himself and will likely progress pretty quickly without a successful treatment. Because of this we ask for discretion as we know this is a necessity but he would prefer it not be shared on social media in mass. Please forward it directly to the people that you want to reach. Thank you so much.
Organizer
Anne Dominguez
Organizer
Phoenix, AZ
