Mums future

My mother Michelle 54 years of age suffers with myotonic dystrophy, this was diagnosed 10 years ago and she has progressively worsened in symptoms, so much so that living alone was no longer possible, without a thought mum came to live in our family home so that she could be cared for, after 2 years mums needs became greater and not having the resources or equipment or even space it was decided mum would go into housing with care, august 2020 (during pandemic) we was over the moon that mum had been offered her forever home with carers on hand 24/7 if need be, visiting was restricted due to Covid we all missed each other greatly but Knew mum had to keep safe and was being well looked after, well at least we thought, Christmas was approaching and with government guidelines meaning we could see mum we hoped that this was something for us all to look forward to!  However the couple of weeks leading up to Christmas mums mood seem to change on the telephone calls we where having, I was informed that mum had  a fall on the 18th of December and had seen a Dr that had diagnosed a sprain to her ankle and a urine infection, i assumed that this was why mum was quite low in mood. On December 24th 2020 it was arranged that we would collect my mum in the evening to come to stay for Christmas her mood today seemed much better. Around 4pm myself and my step mum where getting ready to collect my mum when my phone rang it was mum in tears, she had been calling her call bell as she needed the toilet for nearly an hour and no one had attended her needs, i advised her that i would call them to find out what was going on however when i did try to do so there was no answer. we decided that we would leave to go to collect her. We arrived at the care facility and rang the call bell to be greeted by a carer explaining that mum had just rang her bell for the toilet so she would go and sort that then bring my mum down, i knew this wasn't the case at all mum had been calling for 1 hour and a half, i called mum on the telephone to be greeted by her crying down the phone and lots of background noise of other people, they sounded very busy and mum very upset i asked what was going on to then be told by my mum i will tell you in a minute, 10 mins or so later my mum was brought to the door in a wheel chair that had no foot plates and she was being pushed forward by a carer with her feet dragging under the chair behind her, immediately my step mother a Sister Nurse herself asked for them to stop! and turn mums wheel chair around so not to drag her feet under the chair which was clearly causing her pain, we both immediately noticed such a different person in front of us my mother looked scared she was shaking she was obviously in considerable pain and clearly distressed, the carers where extremely rude and said "i don't know how you are going to cope with her" to which my step mum replied her has a name and we proceeded to get my mother to the car. we had to lift her in as she couldn't physically weight bear, after doing so we made it very clear to the supervisor we where not happy with how mum was presented to us and that we would be taking this matter further, we where then handed a bag of soiled clothes and told that the washing had not been done and this was all my mother had to come to stay with us, i explained that i would wash them and made it very clear that it was not acceptable! We where told management would be in contact regarding our concerns. On the car journey home mum was excited to see the grandchildren but was clearly distressed, as time went on she was opening up more and explained that she hadn't been able to walk since her fall and that she had been telling the carers she could not walk however they had persisted to lift her up and try to walk her to the toilet and on one occasion (23rd December )she was lifted to her feet even after saying she couldn't do it and she fell again due to the pain! On this fall she hurt her hand, when we arrived home and lifted mum to the toilet she was very guarded and nervous, we discovered she had no underwear on and she smelt strongly of urine, her shoes where wet with urine also! After cleaning her up i reassured her that she knew she could talk to me and that i would do what ever i could to help and make things right, i was becoming increasingly concerned that her mobility was now non existent and that she was in extreme pain, also by what she was telling us, I contacted my step mum again who agreed that we would take her to accident and emergency which is what we did, my stepmother attended as only one of us was allowed and i was so upset by it all i didn't feel i could go over it all again with the drs so i waited in the car, the Drs at the hospital where horrified to here what had been going on and they decided a safeguarding referral would be made and advised us to also complete one, which we did. upon investigation including x-rays it was made apparent my mum had sustained 3 fractures one to her left ankle one to her left foot and one to her left hand. I was heartbroken how could this have happened? how could she have suffered for so long? why was she not given the medical attention when she needed it? by the people that where supposed to be caring for her! even more heartbroken that she had been made to stand,  had her feet dragged along and been lifted and man handled all while she was in agony! The Dr clearly stated that without a doubt being made to do these things meant that the break would have been made worse! She remained in hospital while they decided whether she might need surgery, surgery for my mum with her condition is extremely dangerous and it was decided she would remain in plaster cast, with discharge approaching and her care needs now greater than ever, and investigations in process it was decided my mum was not fit for rehab as she  now needs hoisting and requires care for all her needs, it was decided that my mum would temporarily reside at a residential care home, she was heartbroken she's still so young! Mum is now non weight bearing and because of her condition this means that her leg muscles are getting weaker and weaker and she may never walk again!! this is heart-breaking she was mobile with a frame previous to this fall on December 18th 2020 and was managing as much as an independent life as possible with carers there when needed, now she may never walk again (extremely likely) and will require hoisting, and all care! my mothers mental state is not good! we have all lost trust in the healthcare system and our aim is to be able to raise enough money for living facilities and the disability facility's that she needs here with us so that she can feel safe loved happy and also have some independence! She is desperate to do that and I'm hoping that the generosity of the people that read this could help us some way forward with this! it honestly would change her life and mean that she would feel safe again! she wants to watch her grandchildren grow and be apart of there lives, and we want to make her forever home so can she can see the rest of her life out with love care and dignity! thanks for reading