Help Me to See a Neurologist

Hi Friends <3

It's me, Juliet.

I appreciate you taking the time to read this.

Those of you that know me, know I’ve been struggling for decades with ill health.

In the last 7 years, my health has consistently spiralled into a debilitating condition(s).

 

Would you believe, despite numerous near-death situations, and my presenting features being neurological in nature - I have yet to see a neurologist who will SCAN my BRAIN & SPINE.

 

I suffer daily with:

> Crippling Migraines

> Constant Nausea & Vomiting

> Dizziness

> Tremor

> Muscle Weakness & Wasting

> Weight Loss to the point of Amenorrhea( Loss of Menstruation)

> Osteoporosis because of malnutrition

> Visual Disturbances & Eye Pain

> Misaligned Jaw Joints

> Severe Gut Dysmotility (Enteric nervous system disruption) to the point of hospitalisation with feeding tubes.
>Vascular Compression Syndromes that have been investigated to not be the cause of my widespread symptoms.
> Dysphagia (Swallowing Disorder)

> Vocal Chord Dysfunction (pain, inability to speak, hoarse voice)

> Asthmatic episodes + aspiration into lungs

> POTS (Postural Orthostatic Tachycardia Syndrome) which leads to fainting, 'spaced out' feelings, dehydration, inability to regulate my temperature, rapid heartbeat, excessive sweating)

> Nerve Pain in my Legs, & Arms (Sitting is extremely uncomfortable, Sleeping is the ONLY relief from the pain)

> Abdominal Pain

> Reproductive Problems (Ovarian)

> Painful to Walk

 

As a result of this: I cannot live a normal life such as go to work, socialise, travel, concentrate properly, eat properly (I survive off peptide formulas), nor go to the toilet properly (I have an irrigation system), or simply do anything a young woman should be freely able to do.

 

I do not hold anything against healthcare workers, it's the system and guidelines in the UK (NHS) that is deeply FLAWED. They send people away and expect GP'S to be able to handle complex problems, when simply, it is beyond their scope, and a patient with needs such as mine requires in-depth testing, and thorough management. Unfortunately, i don't feel i have that much longer to wait before my condition deteriorates again, & I worry about the loss of my limb functioning. The wait to see a Neurologist on the NHS particularly one highly specialised can be anywhere between 4 months to over a year. I have been waiting since the end of 2019 to see one.

 

Please can you help me raise enough money to see a Neurologist privately so that I can also get tests to see whether I have Multiple Sclerosis, Transverse Myelitis (or another inflammatory brain & spine disease) or in fact, whether I have bone degeneration so bad that is has caused ruptured discs to the point of surgery requirement? The point is: I need to be able to determine what's going on so i can get the right treatment.

 

By getting a thorough neurological examination, they should be able to rule in or out some very SERIOUS diseases. I have been left on my own, and i don't know HOW to stop this deterioration without HELP.

 

Your help would ensure I can see the doctor, plus follow ups, and pay for as many tests as I could get. This would include: MRIS, EMG, Lumbar Puncture, etc.

 

Rest assured, whatever I do not use will go directly to rare disease charities.

 

Thank you for reading, helping & sharing – it means the WORLD to me. I deeply believe in the value and the love of the collective consciousness and how we can all make a difference to each other’s lives through aiding & sharing. Despite what I’ve been through & continue to go through – my aim in life is to be KIND & HELPFUL as much as possible. To RESTORE faith in humanity, and I am so grateful to RECEIVE & be BLESSED by other’s kindness, too. Thank you <3