Help Marcause my son with medical assistance

Our son has Dravet Syndrome and we have exauhsted all options for him. Which he was left with a third VNS but we dont want to do it again . Because the othe two VNS caused him to get Gastroparieses where his stomach only works half the way it is supposed to and if we do it again his whole functioning of his stomach intestines could be paralyzed.  And the other one would be deep brain stimulation and that one can change him completely and we dont want that we want Marcause happy .  So we have decided to get a second opinion in Charleston South Carolina At M.A.C.S. where they believe they can help him get the device called a neuropace implant to give him a better life where the seizures dont end him in hospital and on a ventilator. We are asking for that much because we need work on our vehicle to get him there and back and to be able to care for him when we get him there and all the copay that we have to pay when we get there. Please help us get him there we want to help him get the care that he deserves to have we thank you so very kindly.

Donations (0)

  • Anonymous 
    • $10 
    • 1 mo
  • Sheila Johnson 
    • $15 
    • 2 mos
  • Anonymous 
    • $5 
    • 2 mos
  • Stacey Fleming 
    • $100 
    • 2 mos
  • Sheila Johnson 
    • $15 
    • 3 mos
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Organizer

Steven Johnson 
Organizer
Gray Court, SC
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