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Help Levi and Isaac Overcome Health Challenges

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Our family needs your help.

Our son Levi was born on November 17, 2023. He has been in the hospital since birth. He has Goldenhar Syndrome and is trach dependent. He is almost ready to go home now, but

On March 28, our three year old son was sent via ambulance to the same hospital as Levi. Isaac was intubated for two weeks. The hospital neglected to put Isaac back on his prophylactic daily antibiotic for 18 days, and now he is having high fevers daily, he has had to have an NG tube because he won't take a bottle. He has a ton of tests pending, his labs are all out of whack, and so

Levi cannot go home before Isaac. Levi will need to have 24 hour suctioning and Mark and I are the only ones trained to do it. We are waiting on home nursing hours to be approved so that we have at least some help so I can get some sleep.

Living in limbo stinks. The cost of living in limbo is insane. Three hour trips to and from hospital, overnight stays, food, lodging, time off work, stress.

We are asking for your help if you can.

Organizer

Mindi Piasecki
Organizer
Neenah, WI

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