Help Kyler walk again

Kyler has been suffering from some form of Progressive Neurological Disorder.  It Started in May of 2017.  It simply started with Kyler "walking funny".  However, in the months that have passed, it has progressed a lot.  Kyler has lost all ability to walk, crawl, stand, sit and losing his ability to write.  It is still progressing to this day.  And unfortunately, the last couple of months he has been in a great deal of pain.
They have seen multiple doctors, and have done numerous tests.  However, they have no answers and say he is a puzzle, rare, mystery, and they've never seen this before etc.  Primary Children's Hospital is now recommending that he go see a specialist in Rochester, NY.  They leave the 14th of this month for a week of testing, and hopefully some answers.,
The proceeds of this fund are to assist in travel, hotel, medical, taking care of the other five kids at home, etc.
Derek and Sandy (Kyler's parents) have no idea this fund is being put together, and would never ask for assistance.  But, we all know how expensive and hard it can become.  We are looking to alleviate one of the many hurdles, so that they can focus on getting Kyler the help he needs.