Help Mikhail Pay for the Risdiplam Treatment

We, Shirokov's family, want to tell our story, which instantly turned our whole life upside down ...

Our baby Mikhail was born on 05/26/2021. The pregnancy passed without any abnormalities. Screenings, ultrasounds and examinations were absolutely successful. The birth was joint and when our baby was born, we were incredibly happy. We left the hospital and came home. Mikhail grew, developed and made us happy every day. After 1 month, our baby stopped moving his legs and arms. When we came to the family doctor, the doctor was alerted by the child's heavy breathing and lethargy and sent us to the hospital. Doctors were looking for the cause of Mikhail's illness and, meanwhile, fought for his life.

A week later, one of the results came, the terrible diagnosis of type 1 SMA was confirmed. There is no way to express the horror, pain and fear that a doctor experiences when a doctor talks about a child's fatal diagnosis ... SMA is spinal muscular atrophy, a fatal genetic disease that gradually deprives childrens ability to move, swallow and breathe. On average, one of 50 people is an asymptomatic carrier of a mutation that can cause SMA. A sick child is born when 2 such mutations are found, on the mother's side and on the father's side. Unfortunately, we are carriers of this gene. There are 3 options for development when two carriers meet: 50% that the child will be the same carrier, 25% that the child will be sick and 25% that the child will be healthy.

A few years ago, this disease was considered incurable.

There is currently a drug, ZOLGENSMA, which costs $ 2.8 million. The government hasn't approved this medicine for us. Our family is asking for help!!! This is our chance for life. We cannot afford it without you. Don't let our son die. Please support us!!! Pray for Mikhail. We have opened a foundation for the drug ZOLGENSMA !! Every dollar is important to us, as well as the dissemination of information ... With your help, we can make a miracle and give life to a little angel Mikhail. May your goodness return to you!!!!